Members of the ELSI Scholar Directory are scholars and trainees with an interest in research on the ethical, legal, and social implications of genetics and genomics. You may contact members to organize collaborative projects or working groups, share speaking opportunities, solicit expert commentary, obtain advice on policy or legislation, network, and arrange mentor/mentee relationships.
1 - 10 of 13 Scholars
Join Directory-
Alison Bateman-House, PhD, MPH, MA
Assistant Profesor of Medical Ethics
Institution: NYU Grossman School of Medicine
Contact: [email protected]
AREAS OF EXPERTISE
Show more- gene therapy
- Bioethics
- Research Ethics
- Clinical Trials
- Pharmaceutical ethics
-
Pascal Borry, PhD
Professor of Bioethics
Institution: KU Leuven
Contact: [email protected]
AREAS OF EXPERTISE
Show more- Direct to Consumer Genetic Testing
- Ethical and organizational issues in biobanking
- expanded carrier screening
- Non-invasive prenatal screening - NIPT
- Genetic Testing
-
Carolyn Riley Chapman, Ph.D., M.S.
Faculty Affiliate
Institution: Division of Medical Ethics NYU Grossman School of Medicine
Contact: [email protected]
AREAS OF EXPERTISE
Show more- bioethics
-
Curtis R Coughlin II, PhD, MS, MBE
Associate Professor of Pediatrics
Institution: University of Colorado
Contact: [email protected]
AREAS OF EXPERTISE
Show more- return of results
- Clinical Trials
- Clinical Ethics
- Genetic Testing
-
Megan Doerr, MS, LGC
Director, Applied ELSI Research
Institution: Sage Bionetworks
Contact: [email protected]
AREAS OF EXPERTISE
Show more- ELSI Issues in Large-scale Population Cohort Studies
- Open science
- Informed Consent
- participatory research
- algorithmic harms
-
Stephanie M. Fullerton, DPhil
Professor, Bioethics and Humanities at the University of Washington
Institution: University of Washington
Contact: [email protected]
AREAS OF EXPERTISE
Show more- Health Equity
- precision medicine
- Data Governance
- Biobanking
- Stakeholder Engagement
-
Liza-Marie Johnson, MD, MPH, MSB
Physician Ethicist
Institution: St. Jude Children's Research Hospital
Contact: [email protected]
AREAS OF EXPERTISE
Show more- Informed Consent
- Pediatric bioethics
- Consent for Genomic Testing
- Pediatric Research
- Best practices for clinical and research ethics consultation
-
Anna C F Lewis, DPhil
Research Associate
Institution: University of Oxford
Contact: [email protected]
AREAS OF EXPERTISE
Show more- Polygenic risk scores
- genetic ancestry
- diversity
- return of results
- Newborn screening
-
Carolyn P Neuhaus, PhD
Research Scholar
Institution: The Hastings Center
Contact: [email protected]
AREAS OF EXPERTISE
Show more- Community Health
- Research Ethics
- Return of Results
- Ethical Analysis
-
Sophia Rodriguez, MS
Research Genetic Counselor
Institution: Columbia University Dept. of Neurology
Contact: [email protected]
AREAS OF EXPERTISE
Show more- Alzheimer's disease risk
- Late Onset Alzheimer Disease
- Genetic Testing
- genetic predisposition