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  • NIH Sep 25, 1992 | P50

    ELSI Core for the Cooperative Human Linkage Center (CHLC)

    Principal Investigator(s): Murray, Jeff

    Institution: University of Iowa

    FOA Number: N/A

    Abstract

    The CHLC was the first genome center to have an ELSI core as an ongoing part of the center. The ELSI core has two areas of focus. First, it has formed a multidisciplinary IRB-type committee that examines issues related to informed consent in genetics research and reviews genetics protocols by IRBs. These investigators have determined the status of informed consent in consent documents used for DNA banking, have analyzed the problems related to informed consent in DNA studies by genetics investigators in university laboratories, and have developed recommendations regarding the need to expand the concept of informed consent to fit the unique context of DNA banking. The second area of focus has been the establishment of a visiting fellowship program aimed at professionals who think, write, and speak at conferences about the Genome Project, but who are not biological scientists.

    FUNDING AGENCY:

    Funder:
    NIH

    Institute:
    NATIONAL HUMAN GENOME RESEARCH INSTITUTE

    Funding Type:
    P50

    Project Number:
    P50HG000835

    Start Date:
    Sep 25, 1992

    End Date:
    Aug 31, 1996

    PROJECT TERMS:

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