• NIH Sep 25, 2020 | R01

    Ethical, Legal, Social, and Policy Implications of Workplace Genomic Testing

    Principal Investigator(s): LEE, CHARLES (contact), ROBERTS, SCOTT

    Institution: JACKSON LABORATORY

    FOA Number: PA-17-444

    Abstract

    PROJECT NARRATIVE A number of US employers are offering their employees confidential workplace genomic testing (wGT), a service that could inform employees of their genetic risk for certain treatable diseases but may also raise concerns about genetic privacy and workplace discrimination. To understand the potential benefits and risks of wGT, we will survey and interview employers and employees to assess (1) the factors that employers consider when deciding whether or not to offer wGT, (2) the factors that employees consider when deciding whether or not to utilize wGT, and 3) the impact of wGT on employees who have actually undergone testing. By discussing these perspectives in a deliberative workshop with additional wGT stakeholders (e.g., labor, business, and healthcare professional organizations), we will identify the key ethical, legal, social, and policy implications of wGT and suggest practice and policy options for its safe implementation and governance.

    FUNDING AGENCY:

    Funder:
    NIH

    Institute:
    NATIONAL HUMAN GENOME RESEARCH INSTITUTE

    Funding Type:
    R01

    Project Number:
    R01HG010679

    Start Date:
    Sep 25, 2020

    End Date:
    Aug 31, 2024

    PROJECT TERMS:

    Address, Adult, Area, Attitude, Automobile Driving, base, Behavioral, behavioral economics, Belief, Benefits and Risks, biobank, Businesses, Decision Making, Discrimination, Disease, economic impact, Educational workshop, Employee, ethical legal social implication, Ethics, Exhibits, expectation, follow-up, Future, genetic information, genetic privacy, Genetic Risk, genetic testing, Genomics, Health, health plan, Health Professional, Healthcare, Healthcare Systems, improved, Individual, insurance, Internet, Interview, Legal, legal implication, Light, Literature, Medical, Methods, Motivation, Organizational Policy, Perception, Policies, policy implication, Policy Maker, Population, Population Heterogeneity, precision medicine, Prevalence, Preventive, Preventive Medicine, Privacy, Process, Professional Organizations, programs, psychologic, psychosocial, Research, response, Risk, Sales, Sampling, service delivery model, Services, social implication, Social Policies, stakeholder perspectives, Structure, Surveys, Symptoms, Testing, Time, web site, Wellness Program, Workplace

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