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NIH Mar 5, 2018 | K01
Factors Influencing Access and Utilization of Genetic Prenatal Care Services Among Women from Underserved Populations
Institution: MAYO CLINIC JACKSONVILLE
FOA Number: PA-16-190
Abstract
Prenatal screening and testing technologies using genetic methods are rapidly expanding, offering increasing amounts of genetic information about the fetus. However, research shows that women from underserved populations are less likely to receive or accept prenatal genetic services, leading to discordant birth outcomes. We propose to explore the barriers to access and acceptance of prenatal genetic care among women from underserved populations.
FUNDING AGENCY:
Funder:
NIHInstitute:
NATIONAL HUMAN GENOME RESEARCH INSTITUTEFunding Type:
K01Project Number:
K01HG009542Start Date:
Mar 5, 2018End Date:
Feb 28, 2023PROJECT TERMS:
Advisory Committees, Affect, African American, American, American College of Obstetricians and Gynecologists, Amniocentesis, Aneuploidy, Area, Back, base, Belief, Benefits and Risks, Bioethics, Birth, care systems, Caring, cell free DNA, Cells, Child, Chorionic Villi Sampling, Clinic, Clinical, clinical care, Clinical Ethics, cohort, Communities, community based participatory research, Community Engagement, Community Health, community organizations, community partnership, Decision Making, design, Detection, Development, Diagnosis, Diagnostic Procedure, Diagnostic Services, Diagnostic tests, DNA, Doctor of Philosophy, Elements, Eligibility Determination, Empirical Research, Environment, ethical legal social implication, ethnic minority population, Ethnic Origin, experience, Family, fetal, Fetal Development, Fetal health, Fetus, Funding, Future, General Population, Genetic, Genetic Diseases, genetic information, Genetic Research, Genetic Risk, Genetic Screening, Genetic Services, genetic testing, genome sequencing, Goals, Guidelines, Health, health disparity, Health Personnel, Health Services, Health Services Research, Heart Abnormalities, high risk, implementation intervention, implementation research, Improve Access, improved, infant morbidity/mortality, Institution, insurance, insurance coverage, Intervention, K-Series Research Career Programs, Knowledge, knowledge base, Latina, Lead, Link, Live Birth, Maternal Health, maternal serum, Medical Genetics, medical research, medical schools, member, Mentorship, Minority Groups, Morbidity - disease rate, mortality, National Human Genome Research Institute, Neighborhood Health Center, Neonatal, new technology, obstetric care, Outcome, Patients, perinatal morbidity, Perinatal mortality demographics, Population, population based, Pre-Eclampsia, Pregnancy, Pregnancy loss, Pregnant Women, Premature Birth, prenatal, Prenatal care, prenatal experience, prenatal testing, Process, Professional Organizations, Qualitative Research, racial minority, rapid technique, Reporting, Research, research data dissemination, Research Design, Research Ethics, Research Methodology, Research Personnel, Research Training, Resources, response, Risk, Science, screening, screening program, screening services, skills, social, standard of care, Structure, Sustainable Development, Technology, tertiary care, Testing, Time, Training, Translational Research, Trust, underserved community, Underserved Population, Universities, uptake, willingness, Woman, Women's Health