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  • NIH Aug 1, 1992 | F32

    Genetics, Ethics, and Choice: A Qualitative Study

    Principal Investigator(s): Gregg, Robin

    Institution: Eunice Kennedy Shriver Center for Mental Retardation

    FOA Number: N/A

    Abstract

    This study will explore the ethical choices of a small group of genetic counselors and physicians. Drawing on previous research and the questions and case material from a larger study of clinicians' ethical decision-making about genetic information and prenatal and genetic testing, (see Wertz, below) the proposed research will provide data about the ethical choices, reasoning, thoughts, and feelings of clinicians. The research entails interviews; qualitative analysis of the interview data will focus on similarities and differences among respondents, with particular attention to gender differences, if any, and differences between MS-prepared genetic counselors and physicians. Participant observation at genetic counselor training courses will complement the interviews. The long-range aim of the study is to supplement existing and ongoing research by providing a detailed picture of the ways clinicians think and make choices about new genetic information.

    FUNDING AGENCY:

    Funder:
    NIH

    Institute:
    NATIONAL HUMAN GENOME RESEARCH INSTITUTE

    Funding Type:
    F32

    Project Number:
    F32HG000076

    Start Date:
    Aug 1, 1992

    End Date:
    Jul 31, 1995

    PROJECT TERMS:

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