NIH Sep 21, 2021 | R21

Integrating Nurse Champion Model for Group Reproductive Genetic Counseling for Sickle Cell Hemoglobinopathies into Primary Care: A Pilot Implementation Science Study

Principal Investigator(s): JAJA, CHEEDY

Institution: UNIVERSITY OF SOUTH CAROLINA AT COLUMBIA

FOA Number: RFA-HG-20-049

Abstract

PROJECT NARRATIVE: Genetic counseling and health education are essential components of any early diagnosis program for sickle cell disease to ensure that risk results are effectively communicated by healthcare workers to those at-risk couples and their families. These are also important within the context of culture and health literacy because health beliefs and attitudes of the general public have a significant impact on health seeking behaviors that substantially influence reproductive decisions made by individuals and families.

FUNDING AGENCY:

Funder:
NIH

Institute:
NATIONAL HUMAN GENOME RESEARCH INSTITUTE

Funding Type:
R21

Project Number:
R21HG011929

Start Date:
Sep 21, 2021

End Date:
Jun 30, 2024

PROJECT TERMS:

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