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  • NIH Sep 1, 1994 | P41

    National Information Resource on Ethics and Human Genetics (II)

    Principal Investigator(s): Walters, LeRoy

    Institution: Georgetown University

    FOA Number: N/A

    Abstract

    This project will continue the activity of the National Information Resource on Ethics and Human Genetics at the Kennedy Institute of Ethics, Georgetown University. The research group will:
    -continue the collection, cataloging and delivery of materials on the ethical, legal, and social implications (ELSI) of genetic research to be housed in the NRC and indexed for the BIOETHICSLINE database; to tag all bibliographic records that refer to documents produced with funding from the NHGRI; and to enhance the availability of these ELSI materials on-site and via the Internet and document delivery;
    -augment BIOETHICSLINE by offering Internet access to local databases: Genetics and Ethics, and Genetics and the Law, and by linking to GEORGE, the Georgetown University library's online catalog for books, which includes all NRC monographs;
    -to develop the NIREHG Web site
    -by updating the Web editions of the four Scope Notes on ELSI in 'real-time,' i.e., whenever important new documents appear, and
    -by introducing a new information service: 'e-notes in ethics and human genetics,' which will provide succinct descriptions of contemporary ELSI issues, accompanied by links to full text, online resources, and other related Web sites;
    -begin scanning the full text of classic, public- domain documents on ELSI issues, such as "Splicing Life," 1982, and "Screening and Counseling for Genetic Conditions," and to make the texts available on the Web;
    -develop a comprehensive, searchable links database at the NIREHG Web site; and
    -collaborate with the High School Bioethics Curriculum project at the Kennedy Institute in developing bibliographical materials for use by high-school and middle-school teachers and student made available through the NIREHG Web site.

    FUNDING AGENCY:

    Funder:
    NIH

    Institute:
    NATIONAL HUMAN GENOME RESEARCH INSTITUTE

    Funding Type:
    P41

    Project Number:
    P41HG001115

    Start Date:
    Sep 1, 1994

    End Date:
    Jul 31, 2005

    PROJECT TERMS:

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