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NIH Jan 12, 2021 | R00
Organizational and Cultural Dynamics in Genomics Companies: Industry Engagement in Navigating Social and Ethical Issues
Institution: COLUMBIA UNIVERSITY HEALTH SCIENCES
FOA Number: PA-18-398
Abstract
This Pathway to Independence Award (K99/R00) investigates and leverages perspectives from members of the health-related private sector genomics industry, to develop guidance for improving approaches to social and ethical issues in the industry. It does so through in-depth qualitative analysis (interviews, cases studies, comparative analysis), scholarly normative analysis (drawing on theories from bioethics and business ethics), and a Delphi process of iterative questionnaires with industry stakeholders, aimed at strategizing concrete change regarding social obligations of the industry. The research and training program is designed to contribute to a more just distribution of the benefits of genomic technologies.
FUNDING AGENCY:
Funder:
NIHInstitute:
NATIONAL HUMAN GENOME RESEARCH INSTITUTEFunding Type:
R00Project Number:
R00HG010499Start Date:
Jan 12, 2021End Date:
Dec 31, 2023PROJECT TERMS:
Address, Agreement, American, Area, Attention, Award, Back, base, Bioethics, Bioethics Consultants, biotechnology, Boston, Businesses, California, career development, Case Study, comparative, Comparative Study, Complement, Corporate Ethics, curative treatments, Decision Making, Delphi Study, design, Development, Development Plans, Diagnostic, DNA, drug development, Empirical Research, Employee, Entrepreneurship, Ethical Issues, ethical legal social implication, Ethics, experience, Face, gene therapy, Genetic, genome editing, Genomic approach, Genomics, Goals, Government, Health, Health Technology, improved, India, Individual, individual response, Industrialization, Industry, Inequality, innovation, insight, Intervention, Interview, Investigation, Justice, licensing, Light, Link, Machine Learning, member, Methods, Modeling, National Human Genome Research Institute, nebula, next generation sequencing, novel diagnostics, novel therapeutics, operation, Pathway interactions, Patients, Perception, Phase, Play, Policies, population health, Price, Privacy, Private Enterprises, Private Sector, Privatization, Process, programs, Public Health, Questionnaires, Research, research and development, Research Priority, Research Project Grants, Research Training, Role, Scholarship, Schools, Science, Shapes, Silicon, Site, social, Social Justice, Social Obligations, Social Responsibility, South Africa, South African, Strategic Planning, Structure, Technology, theories, Therapeutic, Training, Training Activity, Training Programs, training project, Universities, Work