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Type
Journal Article
Title

Increasing inclusivity in precision medicine research: Views of individuals who are deaf and hard of hearing

Authors:

Author Name(s)
Garofalo, Diana C.
Rosenblum, Howard A.
Zhang, Yuan
Chen, Ying
Appelbaum, Paul S.
Sabatello, Maya

Year:

Date
2021
Journal Book Publisher Name
Genetics in Medicine

Description

Description

Garofalo and colleagues surveyed 267 deaf/hard of hearing individuals and found high levels of support for precision medicine research. Participant responses also revealed potentially overwhelming barriers to research participation, including communication challenges, physical accessibility issues, and fear of harm.

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