8 Consent Scenarios for a Precision Medicine Cohort Study

These eight consent scenarios that describe consent and data sharing arrangements were used to assess respondents' opinions of the conduct of a precision medicine cohort study on genes and environment. In the original study, respondents were shown one, randomly selected scenario, and were asked if they would “consent to share your samples and information with researchers in this manner”. The scenarios vary by consent structure (broad, study by study, menu, or dynamic consent) and by the presence or absence of a statement indicating that cohort participants would “have access to a website where you would be able to see what studies are going on, which studies are using your information, and what each study has learned.”