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Document Type
Brochure

Clinical Broad Data Sharing Consent Brochure, Clinical Genome Resource (ClinGen)

Author(s):

Author Name(s)
Riggs, Erin Rooney
Azzariti, Danielle R.
Niehaus, Annie
Goehringer, Scott R.
Ramos, Erin M.
Rodriguez, Laura Lyman
Knoppers, Bartha
Rehm, Heidi L.
Martin, Christa Lese
Clinical Genome Resource Education Working Group

Year:

Year
2017

This is a printable version of the information from the Clinical Broad Data Sharing Consent Video (see this database). It describes key concepts outlined in the consent form, includes testimonials on the importance of data sharing, and contains information on the risks and benefits involved. The brochure was developed by the Clinical Genome Resource (ClinGen), a not-for-profit, National Institutes of Health (NIH)-funded resource dedicated to sharing genetic data, building knowledge, and improving patient care.

Research Population:

Research Population
Adults

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