This short explanation card defines a tumor mutation and describes what parents of pediatric patients can expect from a tumor mutation report.
This short explanation card defines carrier status for X-linked recessive conditions.
This hort explanation card defines carrier status for recessive genetic conditions.
This focus group guide assesses the perspectives of IRB professionals toward research on medical practices within usual care.
Porter, K.M., Cho, M.K., Kraft S. A., Korngiebel, D. M., Constantine, M., Lee, S. S., Kelley, M., James, C., Kuwana, E., Meyer, A., Diekema, D., Capron, A. M., Magnus, D., Wilfond, B.S. (2017). Research on medical practices (ROMP): Attitudes of IRB personnel about randomization and informed consent. IRB, 39(1), 10-6.
This focus group guide assesses patient attitudes toward research on medical practices within usual care.
Kelley, M., James, C., Alessi Kraft, S., Korngiebel, D., Wijangco, I., Rosenthal, E., Joffe, S., Cho, M. K., Wilfond, B., Lee, S. S. (2015). Patient perspectives on the learning health system: The importance of trust and shared decision making. Am J Bioeth.15(9), 4-17.
- Kraft, S. A., Constantine, M., Magnus, D., Porter, K. M., Lee, S. S. J., Green, M., Kass, N. E., Wilfond, B. S., Cho, M. K. (2017). A randomized study of multimedia informational aids for research on medical practices: Implications for informed consent. Clinical Trials, 14(1), 94-102.