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Genomics ADvISER

Author(s): Shickh, Salma, Rafferty, Sara A., Clausen, Marc, Kodida, Rita, Mighton, Chloe, Panchal, Seema, Lorentz, Justin, Ward, Thomas, Watkins, Nicholas, Elser, Christine, Eisen, Andrea, Carroll, June C., Glogowski, Emily, Schrader, Kasmintan A., Lerner-Ellis, Jordan, Kim, Raymond H., Chitayat, David, Shuman, Cheryl, Bombard, Yvonne, Incidental Genomics Study Team
Year: 2021

Genomics ADvISER is a digital decision aid for use in the delivery of genomic counseling. It is intended as a supplement to genomic counseling with a counselor.

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Genomics ADvISER is a digital decision aid for use in the delivery of genomic counseling. It is intended as a supplement to genomic counseling with a counselor. Genomics ADvISER guides users through a ten-minute video of basic genomic sequencing concepts and five categories of secondary findings followed by brief interactive questionnaires about values, knowledge, and decision-making needs. Please contact the authors of the study to use this tool.

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Research Population: Adults
Citation:

Shickh, S., Rafferty, S. A., Clausen, M., Kodida, R., Mighton, C., Panchal, S., & Bombard, Y., Lorentz, J., Ward, T., Watkins, N., Elser, C., Eisen, A., Carroll, J. C., Glogowski, E., Schrader, K. A., Lerner-Ellis, J., Kim, R. H., Chitayat, D., Shuman, C., Bombard, Y., and Incidental Genomics Study Team (2021). The role of digital tools in the delivery of genomic medicine: Enhancing patient-centered care. Genetics in Medicine, 23(6), 1-9.

Contact: [email protected]

Optional Results Choice Aid (ORCA)

Author(s): Freed, Amanda S., Gruß, Inga, McMullen, Carmit K., Leo, Michael C., Kauffman, Tia L., Porter, Kathryn M., Muessig, Kristin R., Eubanks, Donna, Goddard, Katrina A. B., Wilfond, Benjamin S., Liles, Elizabeth G.
Year: 2021

The Optional Results Choice Aid (ORCA) is a decision aid to support informed, values based decision-making for adult patients and research participants about the reciept of medically actionable, ad

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The Optional Results Choice Aid (ORCA) is a decision aid to support informed, values based decision-making for adult patients and research participants about the reciept of medically actionable, additional findings from genomic sequencing. ORCA will be implemented and evaluated in the NHGRI-funded Cancer Health Assessment Reaching Many (CHARM) study.

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Research Population: Adults
Citation:

Freed, A. S., Gruß, I., McMullen, C. K., Leo, M. C., Kauffman, T. L., Porter, K. M., Muessig, K. R., Eubanks, D., Goddard, K. A. B., Wilfond, B. S., & Liles, E. G. (2021). A decision aid for additional findings in genomic sequencing: Development and pilot testing. Patient Education and Counseling, 104(5), 960-968.

Contact: [email protected]
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