Newborn screening | ELSIhub

Newborn screening

Legal Challenges to Newborn Screening Research

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Join the discussion with panelists Eric Hendricks, JD and Aaron Goldenberg, PhD moderated by Natasha Bonhomme.

Noninvasive prenatal genome sequencing:
Ethical and policy post-birth implications

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F.D.A. Warns Patients About Some Prenatal Genetic Tests

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Aatish Bhatia

Select ethical aspects of next-generation sequencing tests for newborn screening and diagnostic evaluation of critically ill newborns

Read more about Select ethical aspects of next-generation sequencing tests for newborn screening and diagnostic evaluation of critically ill newborns

Innovative Screening Approaches and Therapies for Screenable Disorders in Newborns (R01 - Clinical Trial Optional)

Read more about Innovative Screening Approaches and Therapies for Screenable Disorders in Newborns (R01 - Clinical Trial Optional)

Innovative Screening Approaches and Therapies for Screenable Disorders in Newborns (R03 - Clinical Trial Optional)

Read more about Innovative Screening Approaches and Therapies for Screenable Disorders in Newborns (R03 - Clinical Trial Optional)

Lessons that newborn screening in the USA can teach us about biobanking and large-scale genetic studies

Read more about Lessons that newborn screening in the USA can teach us about biobanking and large-scale genetic studies

Parents' decisions to screen newborns for FMR1 gene expansions in a pilot research project

Read more about Parents' decisions to screen newborns for FMR1 gene expansions in a pilot research project

Is newborn screening for cystic fibrosis a basic human right?

Read more about Is newborn screening for cystic fibrosis a basic human right?

Screening policy for cystic fibrosis. The role of evidence

Read more about Screening policy for cystic fibrosis. The role of evidence

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