ELSIcon2022 • Panel • May 27, 2022
Ellen Clayton, Sarah Hagaman, Ayden Eilmus, Zhijun Yin
ELSIcon2022 • Panel • May 27, 2022
Ellen Clayton, Sarah Hagaman, Ayden Eilmus, Zhijun Yin
ELSIcon2022 • Paper • May 27, 2022
Şule Yaylacı, Wendy Roth
The incorporation of genetics and genomics into medical care and the public domain raises new challenges for how we understand privacy and identity, concepts that have long been closely linked in American discourse.
“We used to think our fate was in the stars,” quipped James Watson in a Time magazine piece announcing the Human Genome Project (HGP). “Now we know, in large measure, our fate is in our genes.” Scientific insights and technological developments have been propelled by humans’ insatiable curiosity about ourselves and our world, and the HGP—with the goal of mapping the human genome—grew out of that curiosity.
Powerful works of art enrich our understanding of the issues that matter most in our lives—not least in controversial areas of the biosciences. By exploring the dense cultural networks that shape science and technology, they help us see multiple dimensions of policy issues that might be opaque to other forms of analysis. Novels, from Frankenstein to Never Let me Go, have provided a space for reflection, for deepening and expanding our awareness of the impact of genetics on society.
Elissa Nadworny and Sequoia Carrillo
PROJECT NARRATIVE Very little research has been done regarding non-STI-related health disparities affecting sexual and gender minorities (SGM). Even less is known about what these minorities think about the desirability of research that combines genetic variation and data about sexual orientation and gender identity with other health and demographic information, strategies required to understand and address these disparities.