The GEmS can be used to assess the genomic healthcare empowerment of parents (e.g., the meaning of a diagnosis for their child, emotional management of the process, their confidence in utilizing the information, etc.) related to the conduct of genomic sequencing for diagnostic purposes in their children in both research and healthcare settings.
The Genetic Essentialism Scale for Race (GESR) measures beliefs about the relationship between genes and race with 15 items. Please see Table 1 of linked article by Yaylacı and colleagues for complete list of survey items. Participant responses are recorded on a five-point Likert scale (“Strongly Disagree” to “Strongly Agree” or “Don’t Know”).
Ware and colleagues developed the SF-12, a shortened version of the 36-item short-form (SF-36) health survey, to measure physical and mental health in studies with large samples or constraints on questionnaire length.
Rose and colleagues developed a 10-item scale to measure distrust of the United States healthcare system (defined as hospitals, health insurance companies, and medical research) for use in the investigation of its prevalence, causes, and effects.
Fagerlin and colleagues developed the Subjective Numeracy Scale (SNS) to distinguish low- and high quantitative ability individuals for use with patients that need to understand the risks of medical treatments. The SNS is a self report numeracy measure.
This post-return of child genetic test results survey for parents assesses the psychosocial impact of receiving genomic findings by measuring how much participants had specific feelings such as anxiousness, nervousness, uncertainty, etc, in the past week.
This post-return of genetic test results survey assesses the psychosocial impact of receiving genomic findings by measuring how much participants had specific feelings such as anxiousness, nervousness, uncertainty, etc, in the past week.
Peshkin and colleagues developed and tested the Pediatric BRCA1/2 Testing Attitudes Scale (P-TAS) to assess parental attitudes about and interest in testing their minor children for BRCA 1/2 mutations, which have been linked to breast and/or ovarian cancer risk. Item development was based on literature review and the research and counseling experiences of the authors. This 11-item instrument may be integrated into genetic counseling research or used to identify subgroups of parents who are highly motivated to have their children tested.