Genome Empowerment Scale (GEmS)

The GEmS can be used to assess the genomic healthcare empowerment of parents (e.g., the meaning of a diagnosis for their child, emotional management of the process, their confidence in utilizing the information, etc.) related to the conduct of genomic sequencing for diagnostic purposes in their children in both research and healthcare settings.

SF-12 Health Survey

Ware and colleagues developed the SF-12, a shortened version of the 36-item short-form (SF-36) health survey, to measure physical and mental health in studies with large samples or constraints on questionnaire length.

Pediatric BRCA1/2 Testing Attitudes Scale (P-TAS)

Peshkin and colleagues developed and tested the Pediatric BRCA1/2 Testing Attitudes Scale (P-TAS) to assess parental attitudes about and interest in testing their minor children for BRCA 1/2 mutations, which have been linked to breast and/or ovarian cancer risk. Item development was based on literature review and the research and counseling experiences of the authors. This 11-item instrument may be integrated into genetic counseling research or used to identify subgroups of parents who are highly motivated to have their children tested.

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