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Event
ELSI Friday Forum |Patients as Partners in Sickle Cell Disease Research in Africa: Ethos, Challenges and Lessons Learned
Join us on Friday, May 10, 2024, for the next ELSI Friday Forum: Patients as Partners in Sickle Cell Disease Research in Africa: Ethos, Challenges and Lessons Learned, with speakers: Ms. Arafa… -
Event
Population Descriptors for Legacy Genomic Data: Challenges and Future Directions
Several National Institutes of Health (NIH) Institutes, Offices, and Centers* are partnering to host a two-day virtual workshop on May 28-29, 2024, to further explore the recommendations from the… -
Funding Opportunity
Research Opportunity Announcement for the Advancing Health Research through Ethical, Multimodal AI Initiative
- health research
- Artificial intelligence
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Publication
Additional findings from the 100,000 Genomes Project: A qualitative study of recipient perspectives
Genetics in Medicine -
Publication
Experiences of pediatric cancer patients (age 12-18 years) with extensive germline sequencing for cancer predisposition: A qualitative study
European Journal of Human Genetics -
Publication
Queering the genome: Ethical challenges of epigenome editing in same-sex reproduction
Journal of Medical Ethics -
Publication
A systematic review of the assessment of the clinical utility of genomic sequencing: Implications of the lack of standard definitions and measures of clinical utility
European Journal of Medical Genetics