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Video
March 2024 ELSI Friday Forum: The Impact of Dobbs on Emerging Reproductive Technologies
In 2022 the US Supreme Court Dobbs vs. Jackson Women’s Health Organization overturned federal protection for abortion. This historic ruling not only relegates this authority to state legislatures but…- Assisted Reproductive Technology
- reproductive rights
- Dobbs
- IVF
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Video
TraineeHub | Navigating Authorship: Who's on First?
Publishing in a top-notch scientific journal is a great reason for celebration. But getting there takes time, effort, and the ability to navigate power dynamics while maintaining research integrity.…- Authorship
- academic publishing
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Video
Twisted Helix: Can Public-Private Partnership Genomic Projects Be Fair and Equitable?
Biotechnological innovation almost always entails all three strands of the triple helix: academia, government, and industry. This is increasingly true for large scale genomics and biomedical research…- Government
- Industry
- Private Enterprises
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Grant Abstract
A Multi-stakeholder Approach to the ELSI of Social and Behavioral Genomics: Investigating the Field's Downstream Implications to Mitigate Harms, Promote Benefits, and Locate Social Responsibility
PROJECT NARRATIVE Using an innovative multi-stakeholder approach, this study will contribute essential and timely data, new methods, and ethical analyses to first investigate stakeholders’ (i.e.,…- Accountability
- social marketing
- Social Policies
- Advisory Committees
- educational models
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Grant Abstract
Trans/Forming Genomics: Guidance for Research Involving Transgender and Gender Diverse People
PROJECT NARRATIVE The recent explosion in biobanking, more routine collection of data on gender identity, and rapid expansion of research in transgender and gender diverse (TGD) populations has…- gender affirmation
- gender diversity
- gender expression
- polygenic risk score
- precision medicine
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Grant Abstract
GENETIC ATTRIBUTIONS AND RACIALIZED PERCEPTIONS OF OBESITY
The proposed research will examine primary care physicians’ attitudes and beliefs about genetic causes of obesity in Black and White patients, as well as perceptions among Black and White adults with…- Genetic Predisposition to Disease
- patient agents
- Patient Care
- Primary Care Physician
- Stigmatization
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Grant Abstract
Community Engagement Core
NARRATIVE / PUBLIC HEALTH RELEVANCE STATEMENT The Community Engagement Core (CEC) will provide the oversight needed to ensure the U54 Pacific Center for Genome Research (PCGR)’s consideration of…- medically underserved
- Arterial Disorder
- Atherosclerosis Risk in Communities
- Community Health Education
- Framingham Heart Study
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Grant Abstract
Exploring parental perspectives on pediatric genome testing, research, and data management in a multicultural population
Project Narrative Racial/ethnic disparities in genomic testing and research participation threaten to exacerbate inequities in health outcomes, particularly in pediatrics.3-7 Given that current…- Algorithms
- Adolescent
- African American
- Asian
- Consent
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Grant Abstract
Implementation of an impact assessment tool to optimize responsible stewardship of genomic data in the cloud
PROJECT NARRATIVE Cloud computing promises to scale up storage, analysis and sharing of health data needed to accelerate research in genomics and precision medicine but methods for evaluating how…- Data science
- bioethics
- Algorithms
- Delphi Study
- computerized tools
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Grant Abstract
Identifying strategies to reveal genetic results over the lifespan
PROJECT NARRATIVE If healthy babies are sequenced near birth, when should genetic information relevant to later stages of their lives be revealed? There are different possible strategies for when…- Decision making
- Specific qualifier value
- screening panel
- Genetic Diseases
- genetic screening