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News
ELSI Abroad: Spotlight on Australia
Across the globe, ELSI studies continue to respond to the undeniable impacts of genetics and genomics on society and address both persistant and emerging issues. We hope that a global perspective on… -
News
ELSI Abroad: Spotlight on Belgium
In this fourth installment of our series of interviews that aim to foster a global perspective on the ELSI field of study and inspire information sharing and collaboration across national borders, we… -
News
ELSI Abroad: Spotlight on the United Kingdom
CERA is pleased to share a set of interviews that aim to foster a global perspective on the ELSI field of study and inspire information sharing and collaboration across national borders. In this… -
News
ELSI Abroad: Spotlight on Canada
The global effort to map and sequence the human genome was accompanied by initiatives in several countries that supported the study of its ethical, legal, and social implications or aspects. Over… -
In the Media
NEWS 23 February 2024 ‘All of Us’ genetics chart stirs unease over controversial depiction of race
Nature |Debate over figure connecting genes, race and ethnicity reignites concerns among geneticists about how to represent human diversity.- All of Us Research Program
- race and genetics
- Ethnicity
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News
ELSI Research Methods Spotlight: Social Network Analysis
Laura M. Koehly, Ph.D., Chief & Senior Investigator at the Social and Behavioral Research Branch (SBRB) of the National Human Genome Research Institute (NHGRI), develops and applies social… -
News
ELSI in Review • March 2024
About this listing ELSI in Review is a listing of recently published reviews of the literature on key ELSI topics curated by CERA staff. Our March 2024 set explores liability in applications of… -
In the Media
‘All of Us’ reports half of the genomes it has sequenced are from non-Europeans
STAT News |Six years ago, the National Institutes of Health placed its biggest ever bet on precision medicine, launching a study to enroll over 1 million participants in an ambitious data-gathering…- All of Us Research Program
- Pangenome
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News
ELSI in Review • February 2024
About this listing ELSI in Review is a listing of recently published reviews of the literature on key ELSI topics curated by CERA staff. Our February 2024 set explores ethical considerations for… -
In the Media
23andMe Breach Targeted Jewish and Chinese Customers, Lawsuit Says
The New York Times |The class-action suit said the genetic testing company failed to notify customers whose personal information was compiled into “curated” lists that were sold on the dark web.- 23andMe
- genetic data
- Biobanking and genomic databases
- breaches of confidentiality