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Just Funded

Our new Just Funded feature is a listing of ELSI grants that were recently awarded by the National Human Genome Research Institute (NHGRI). If we missed your grant, please email us at [email protected]

News

ELSI in Review • October 2022

About this listing ELSI in Review is a listing of recently published reviews of the literature on key ELSI topics curated by CERA staff. Our October 2022 set explores disclosure of secondary…

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CERA Co-Director Mildred Cho Recognized for Outstanding Mentorship with Inaugural Bernard Lo, MD Award in Bioethics

Mildred Cho, PhD, Professor of Pediatrics and Medicine at Stanford University, has been named the recipient of The Greenwall Foundation’s inaugural Bernard Lo, MD Award in Bioethics. The Lo Award…

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ELSI in Review • September 2022

About this listing ELSI in Review is a listing of recently published reviews of the literature on key ELSI topics curated by CERA staff. Our September 2022 set explores parent experiences with…

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ELSI in Review • August 2022

About this listing ELSI in Review is a listing of recently published reviews of the literature on key ELSI topics curated by CERA staff. Our August 2022 set explores ethical issues related to…

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Announcing a New Special Issue of the Journal of Literature and Science

We are pleased to announce the publication of a special issue of the Journal of Literature and Science, Fictions of Genetic Privacy, co-edited by Jay Clayton and Claire Sisco King. It features nine…

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ELSI in Review • July 2022

About this listing ELSI in Review is a listing of recently published reviews of the literature on key ELSI topics curated by CERA staff. Our July 2022 set explores regulations for direct-to-consumer…

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Solicitation of Nominations for the 2022 NHGRI’s Outstanding Award for Enhancing Diversity, Equity, Inclusion, and Accessibility in the Genomics Workforce

View Notice online Notice Number: NOT-HG-22-014, Release Date: June 7, 2022 Purpose The National Human Genome Research Institute (NHGRI) solicits nominations for its first annual Outstanding…

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Using a Family Advisory Council to Understand the Informational Needs of Prospective Gene Therapy Trial Participants: An Interview with the Co-PIs of the SCDGENE CERA Working Group

Sickle cell disease (SCD), characterized by severe pain crisis and progressive organ damage as well as early death, is one of the most common inherited blood disorders in the world. However, since 90…

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ELSI in Review • June 2022

About this listing ELSI in Review is a listing of recently published reviews of the literature on key ELSI topics curated by CERA staff. Our June 2022 set explores distributed ledger technology in…