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Video
Indigenizing Genomics and Advancing Indigenous Data Sovereignty
The ELSI Friday Forum was held on Friday, February 10, 2023. Indigenous peoples have embodied genetic understanding within Indigenous knowledge systems long before encountering settler-science…- Indigenous genomics
- data sovereignty
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Video
ELSIconversations: Responsible Stewardship: Establishing Standard Data Elements and a Community of Practice
In the final session, panelists lead the charge for establishing a community of practice that is best able to share experiences across programs. Topics include key data elements, reporting and…- community
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Video
Constructing Strategies to Address and Assess Equity, Outreach, and Impact
The second session highlights strategies and solutions to some of the issues raised in Session 1. There is a specific focus on community engaged research and implementation strategies that target…- community based research
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Illuminating Ethical Issues Encountered in Population Screening Programs
In the first of three sessions, panelists with experience with population genetic screening programs will discuss issues that have arisen with existing screening programs. Topics may include ethical…- Population screening and public health genomics
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Wrestling with Social and Behavioral Genomics
Social and behavioral genomics research uses huge sets of genetic data in attempts to shed light on phenotypes from smoking and eating behaviors, to psychiatric disorders, to sexuality and…- Sociobehavioral genetics
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ELSIcon2022 Paper: The lack of a standard definition of clinical utility limits the assessment of the clinical impacts of whole exome/whole genome sequencing
ELSIcon2022 • Paper • May 31, 2022 Claudia Azuelos, Anne-Marie Laberge Background: Whole-exome sequencing (WES) and whole-genome sequencing (WGS) are diagnostic tests for rare genetic diseases.…- Live
- Paper
- Language and categorization
- Genetic testing and screening
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Video
ELSIconversations ELSICon2022: Innovating Equitable Communication Modalities for Patient Activation and Cascade Testing for Familial Hypercholesterolemia
Co-Moderators: Nora Henrikson, PhD, MPH & Mildred Cho, PhD Presenters: Gemme Campbell-Salome, PhD, Kelly Morgan, LGC, & Eric Tricou MS, CGC Link to pre-recorded…- Familial Hypercholesterolemia
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ELSIconversations ELSICon2022: The All of Us Research Program: What Duties do Researchers Have When Conducting Precision Medicine Research?
Co-Moderators: Johanna Crane, PhD & Mildred Cho, PhD Presenters: Katherine Blizinsky, PhD; Subhashini Chandrasekharan, PhD; Sonya Jooma, MA & Rachel Bailey, ABD Links to…- precision medicine research
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Video
Genetic Advantages in Sports: When Do They Count as "Doping"?
What is the essence of sports, and how does that impact the way doping is defined? The sports world is already preparing for an inevitable wave of "gene-doping" as gene-transfer technologies advance…- Doping In Sports
- Sports
- Genetic Enhancement
- genetic therapy
- Gene Transfer
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Video
ELSIcon2022 Paper: Willingness towards re-use of donated biosamples for stroke genomic research among West African stroke patients and stroke-free individuals
ELSIcon2022 • Paper • May 27, 2022 Olorunyomi Olorunsogbon, Muyiwa Adigun, Babatunde R. Ojebuyi, Joshua Akinyemi, Kolawole Wahab, Albert Alpalu, Fred S. Sarfo, Lukman F. Owolabi, Rabiu Musbahu,…- Attitudes about sharing biological samples and health data
- global health
- Paper
- Pre-Recorded