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ELSIcon2022 Paper: The need to consider a priori motivations and deterrents: A systematic review of elements influencing the consent process for genetic tests from the perspective of patients.
ELSIcon2022 • Paper • May 27, 2022 Frederic Coulombe, Anne-Marie Laberge Background: Consent for genetic tests is a well-established practice. Nevertheless, there is no consensus on what specific…- Uptake of genetic testing
- Genetic testing and screening
- Paper
- Pre-Recorded
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ELSIcon2022 Paper: The definition and handling of genomic data in a digitalized society: A Japanese perspective
ELSIcon2022 • Paper • May 27, 2022 Jusaku Minari The development of genomic research increasingly contributes to the understanding, diagnosis, and treatment of various diseases, including…- Education and public reception of genetic science
- Paper
- Pre-Recorded
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ELSIcon2022 Paper: The Role of Patient Advocacy Groups Following Prenatal Diagnosis of a Genetic Condition
ELSIcon2022 • Paper • May 27, 2022 Kaitlynn Craig, Marsha Michie, Kirsten Riggan Little research has been conducted to support the a priori claim that prenatal genetic testing is justified by the…- Genetic Counseling
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- Pre-Recorded
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ELSIcon2022 Flash: The Perspective on Healthcare Providers on the Return of Secondary Genetic Findings in Africa
ELSIcon2022 • Flash • May 27, 2022 Abimbola Oladayo, Sydney Prochaska, Tamara Busch, Lanre Adeyemo, Lord Jephthah Joojo Gowans, Mekonen Eshete, Waheed Awotoye, Azeez Alade, Adebowale Adeyemo, Peter…- return of results
- Genetic testing and screening
- Flash
- Pre-Recorded
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Video
ELSIcon2022 Paper: The ELSI of Pandemic Biobanking
ELSIcon2022 • Paper • May 27, 2022 Sara Watson, Karen Meagher The objective of the Pandemic Research: Optimizing Technology and Ethics for Coronavirus Teams Implementing Novel Genetics (PROTECTING…- Attitudes about sharing biological samples and health data
- Biosafety
- Environment
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- Pre-Recorded
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ELSIcon2022 Paper: The 'Lived Experience' of Pediatric Gene Therapy - A Scoping Review
ELSIcon2022 • Paper • May 27, 2022 Laura Kimberly, Cara Hunt, Ryan Dieudonne, Alix Hall, Pat Furlong, Andrew McFadyen, Alison Bateman-House, Jennifer DeSante-Bertkau Little is known about patients…- Motivation to participate in research
- Gene therapy and gene editing
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- Pre-Recorded
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ELSIcon2022 Paper: Systematic review of recommendations on the use of race, ethnicity and ancestry in the context of genetics research
ELSIcon2022 • Paper • May 27, 2022 Madelyn Mauro, Anna Lewis The appropriate use of population descriptors in genetics and beyond has been an often visited topic. Here we present the results of a…- Language and categorization
- Ethnicity
- Use of race and ancestry in research and the clinic
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- Pre-Recorded
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ELSIcon2022 Paper: Symbolic Legislation and the Regulation of Stroke Biobanking and Genomics Research in Sub-Saharan Africa
ELSIcon2022 • Paper • May 27, 2022 Muyiwa Adigun, Babatunde R. Ojebuyi, Joshua Akinyemi, Kolawole Wahab, Albert Alpalu, Fred S. Sarfo, Lukman F. Owolabi, Rabiu Musbahu, Reginald Obiako, Mayowa…- Laws and research sites
- Biobanking and genomic databases
- Paper
- Pre-Recorded
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ELSIcon2022 Paper: Shining a light on overlooked questions in ELSI genomics
ELSIcon2022 • Paper • May 27, 2022 Ainsley Newson The rapid mainstreaming of clinical genomics and an ever-expanding global genomics research agenda have given rise to a large body of scholarship…- Reflections on the ELSI field
- Genetic testing and screening
- Paper
- Pre-Recorded
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Video
ELSIcon2022 Flash: Self-Identified Spirituality and Interest in Genetic Testing for Hereditary Cancer Risk
ELSIcon2022 • Flash • May 27, 2022 Tesla Theoryn, Deborah J. Bowen, EJ Dusic, Kevin C. Cain, Brian Shirts, Elizabeth Swisher, Jeannine Brant Genetic testing for cancer risk can reduce the burden of…- Uptake of genetic testing
- Genetic testing and screening
- Flash
- Pre-Recorded