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Video
ELSIcon2022 Flash: Communicating precision medicine research: multidisciplinary teams and diverse communities
ELSIcon2022 • Flash • May 31, 2022 Julie Beans Introduction: Precision medicine research investigates the differences in individuals’ genetics, environment, and lifestyle to tailor health…- Live
- Flash
- tools
- precision medicine
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Video
ELSIcon2022 Panel: Developing an Evidence Base for Investigative Genetic Genealogy (IGG) Policy-Making
ELSIcon2022 • Panel Session 1 • May 31, 2022 Ellen Clayton, Stephanie Malia Fullerton, Amy McGuire, Natalie Ram Investigative genetic genealogy (IGG) is a novel technique for identifying…- Live
- Panel
- Emerging technologies - public opinion and policy
- Law, regulation, and governance
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Video
ELSIcon2022 Flash: Distributional Cost-Effectiveness Analysis to Incorporate Health Equity Concerns in the Assessment of the Value of Precision Medicine Technologies
ELSIcon2022 • Flash • May 31, 2022 Cheng Chen, Jeroen Jansen BACKGROUND: Distributional cost-effectiveness analysis (DCEA) has been recently proposed as an intuitive extension of conventional…- Live
- Flash
- tools
- Health Disparities
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Video
ELSIcon2022 Panel: Extending the Belmont Principles: Sovereignty and Solidarity in Genomic Research
ELSIcon2022 • Panel Session 2 • May 31, 2022 Vanessa Hiratsuka, Bobby Saunkeah, Joon-Ho Yu, Alize Ece Gunay, Krystal Tsosie The Belmont principles of respect for persons, beneficence, and…- Live
- Panel
- Community oversight of research
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Video
ELSIcon2022 Flash: Health professionals’ perspectives on the ethics of using COVID-19 host genomic information for clinical and public health decision-making during the pandemic
ELSIcon2022 • Flash • May 31, 2022 Sheethal Jose, Gail Geller, Juli Bollinger, Jeffrey Kahn, Brian Garibaldi Advances in host genomics research can play an important role in enabling…- Live
- Flash
- Population screening and public health genomics
- Genetic testing and screening
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Video
ELSIcon2022 Flash: How Did the Biodeterministic View of Criminality Influence Coercive Sterilization in the State of Iowa from 1934 to 1976?
ELSIcon2022 • Flash • May 31, 2022 Darian Thompson, Nina Vo, Stella Murphy, Juan Gudino, Nicole Novak At the end of the 19th century in the U.S., eugenic “science” posited that criminal…- Live
- Flash
- Eugenic sterilization in the 20th century
- reproductive genetics
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Video
ELSIcon2022 Paper: Patients’ and Parents’ Perceived Utility of Genomic Sequencing: Instrument Development and Validation
ELSIcon2022 • Paper • May 31, 2022 Caryn Rubanovich, Jill Robinson, Sarah Classen, Janet Malek, Kyle B. Brothers, Benjamin Wilfond, Barbara Koenig, Carol Horowitz, Christine Rini, Barbara…- Live
- Paper
- tools
- Genetic testing and screening
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Video
ELSIcon2022 Paper: The Genome and the Biome: Cystic Fibrosis @ Six Feet Apart
ELSIcon2022 • Paper • May 31, 2022 Rebecca Mueller Though cystic fibrosis is often referenced as a mendelian genetic disease, it also provides insights about the human microbiome and the…- Live
- Paper
- Population screening and public health genomics
- identity
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Video
ELSIcon2022 Paper: The Individual Genome as a Commons: Getting Genome Conceptualization and Governance Right
ELSIcon2022 • Paper • May 31, 2022 Shelly Simana Current "genome conceptualization and governance" (GCG) in the U.S. is framed around individual rights and has taken on a libertarian ethos. An…- Live
- Paper
- Data and data stewardship
- identity
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Video
ELSIcon2022 Paper: Using cost-utility analysis to evaluate the health equity impacts of population genetic screening for BRCA1/BRCA2
ELSIcon2022 • Paper • May 31, 2022 Kate Saylor Predictive genetic screening in unaffected individuals is becoming more accessible, but its relevance for advancing health equity is debated. Many…- Live
- Paper
- Population screening and public health genomics
- Genetic testing and screening