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Publication
Barriers to carrier testing for adult cystic fibrosis sibs: The importance of not knowing
American Journal of Medical Genetics -
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Publication
Exploration of the effects of predictive testing for Huntington disease on intimate relationships
Am J Med Genet -
Publication
Testing healthy children and adolescents: Recommendations for avoiding harm
The Genetic Resource -
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Publication
Data access, ownership, and control: Toward empirical studies of access practices
Knowledge: Creation, Diffusion, Utilization -