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Grant Abstract

Center for Research on Ethical, Legal & Social Implications of Psychiatric, Neurologic & Behavioral Genetics

Project Narrative. Advances in psychiatric, neurologic and behavioral (PNB) genetics have brought the prospect of predictive and diagnostic genomic testing for many PNB conditions closer to clinical…

Grant Abstract

Programs for the Training and Advancement of the Next GENeration of Native Researchers in Genetics, Ethics and Society

Project Narrative The lack of American Indian and Alaska Native professionals in genomic sciences today highlights the tremendous need for effective training and research programs to prepare the next…

Grant Abstract

Behavioral Epigenetics in Children: Exploring the Social and Ethical Implications of Translation

This Pathway to Independence Award (K99/R00) will prepare the candidate to become an interdisciplinary ELSI researcher with a high-quality, independently funded research program exploring the…

Grant Abstract

ELSI Biennial Congress

PROJECT NARRATIVE The goal of the biennial ELSI Congress is to provide a dedicated, regularly scheduled meeting for researchers focused on the ethical, legal and social implications of genetic and…

Grant Abstract

Demographic Patterns of Eugenic Sterilization in Three U.S. States: Mixed Methods Investigation of Reproductive Control of the 'Unfit'

PROJECT NARRATIVE We will undertake epidemiological, historical and mixed-methods analysis of nearly 30,000 eugenic sterilization requests processed by three U.S. states: California, North Carolina,…

Grant Abstract

Ensuring Patients' Informed Access to Noninvasive Prenatal Testing

PROJECT NARRATIVE The goal of this study is to study the effect of an evidence-based communication tool to support patients? decision-making about noninvasive prenatal genetic testing, by focusing on…

Video

Closing Remarks

ELSI Virtual Forum - Closing Remarks Sandra Soo-Jin Lee and Mildred Cho  

Video

Studying America’s Eugenics Era through an ELSI Lens: Data, Context, and Relevance

We present innovative interdisciplinary research on the history of eugenic sterilization in the 20th century US, with the objective of showcasing new approaches in methodology and dissemination, and…

Video

Integrating ELSI and Genomics: Past, Present and Future (Keynote)

In 1990, the first Program Announcement for the ELSI Program solicited research proposals across nine domains in the intersection between human genetics and society. The idea was to sponsor research…

Video

Polygenic Risk Scores & Behavioral Traits: Interrogating the Science & Ethics

The development and aggregation of huge datasets of genomic information, often including hundreds of thousands of participants, has enabled large-scale genome-wide association studies (GWAS) of a…