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Publication

Perspectives on choice of law challenges in multistate precision medicine research

Journal of Law and the Biosciences
Laura M. Beskow, Catherine Hammack-Aviran, James W. Hazel, Leslie E. Wolf
To explore the implications of the different laws governing research in each state for participant rights and protections, Beskow and colleagues interviewed experts in law, human research protections…

Grant Abstract

The Ethics of Inclusion: Diversity in Precision Medicine Research

A major challenge for precision medicine research is including historically under-represented groups in numbers sufficient to ensure statistically valid inferences of the influence of relevant risk…

Research Tool

Influences on Precision Medicine Knowledge and Attitudes (Survey)

This survey asks participants to supply demographic information (including educational level, household income, and race), rate their familiarity with precision medicine terms, indicate their…

Job Posting

Joint Postdoctoral Fellowship in Clinical Ethics and the ELSI of Precision Medicine

The University of North Carolina (UNC) Center for Genomics and Society (CGS) and the Center for Bioethics (C:B), together with the Program for Precision Medicine in Health Care (PPMH), announce a…

Job Posting

Joint Postdoctoral Fellowship in Clinical Ethics and the ELSI of Precision Medicine

The University of North Carolina (UNC) Center for Genomics and Society (CGS) and the Center for Bioethics (C:B), together with the Program for Precision Medicine in Health Care (PPMH), announce a…

Publication

Increasing inclusivity in precision medicine research: Views of individuals who are deaf and hard of hearing

Genetics in Medicine
Garofalo, Diana C., Rosenblum, Howard A., Zhang, Yuan, Chen, Ying, Appelbaum, Paul S., Sabatello, Maya
Garofalo and colleagues surveyed 267 deaf/hard of hearing individuals and found high levels of support for precision medicine research. Participant responses also revealed potentially overwhelming…

Grant Abstract

The Ethics of Inclusion: Diversity in Precision Medicine Research

PROJECT NARRATIVE This study aims to analyze how diversity and inclusionary practices are conceptualized and operationalized by a range of stakeholders in precision medicine research in order to…

Grant Abstract

The Ethics of Inclusion: Diversity in Precision Medicine Research

PROJECT NARRATIVE This study aims to analyze how diversity and inclusionary practices are conceptualized and operationalized by a range of stakeholders in precision medicine research in order to…

Video

Precision Medicine Research, ‘All of Us’, and Inclusion

A Discussion for Journalists • November 16, 2021 This is the third in a series "Genomics in Society: New Developments, New Questions: Discussions with Journalists" hosted by Hastings Center, in…

Grant Abstract

Integrating Ethics into Machine Learning for Precision Medicine

The overall goal of this project is to understand how to encourage and enable people who are developing artificial intelligence for personalized health care to be aware of values in their daily…