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ELSIcon2022 Flash: Communicating precision medicine research: multidisciplinary teams and diverse communities
ELSIcon2022 • Flash • May 31, 2022 Julie Beans Introduction: Precision medicine research investigates the differences in individuals’ genetics, environment, and lifestyle to tailor health…- Live
- Flash
- tools
- precision medicine
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Video
Precision Medicine Research, ‘All of Us’, and Inclusion
A Discussion for Journalists • November 16, 2021 This is the third in a series "Genomics in Society: New Developments, New Questions: Discussions with Journalists" hosted by Hastings Center, in…- All of Us
- precision medicine research
- inclusion
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ELSIcon2022 Paper: Precision medicine for whom? Upstream and downstream exclusion
ELSIcon2022 • Paper • May 31, 2022 Ilaria Galasso This paper scrutinizes the precision medicine (PM) approach in terms of benefits distribution: it examines the expected outputs of PM research…- Live
- Paper
- Recruiting diverse participants to precision medicine research
- genomics research
- Biobanks
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Video
ELSIcon2022 Panel: Disability Justice and Precision Medicine Across the Lifespan: Towards a Future of Equity and Access
ELSIcon2022 • Panel • June 3, 2022 Kevin Mintz, David Wasserman, Leslie Francis, and Andrew Peterson This interdisciplinary panel will advance the dialogue between disability communities and those…- Live
- Panel
- Stigma and discrimination
- precision medicine
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ELSIcon2022 Panel: Engagement with Historically Marginalized Communities: Methods, Positionality and ELSI in Precision Medicine Research
ELSIcon2022 • Panel Session 12 • June 2, 2022 Kyle B. Brothers, Nanibaa' A. Garrison, Maya Sabatello, Amy Lemke The practice of community engaged research is grounded in ethical, practical,…- Live
- Panel
- Recruiting diverse participants to precision medicine research
- genomics research
- Biobanks
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Video
New Models for Ethical AI in Precision Medicine: Empirical and Normative ELSI Inquiry
The convergence of genomics, information sciences and Electronic Health Records is a main driver of precision medicine (PM). A common feature of definitions of PM is the use of big data for… -
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Investigating an Ethos of Duty in Precision Medicine Research Calls for Minority Participation
ELSIcon2022 • Pre-recorded Paper Rachel Bailey, ABD - University of Georgia, Graduate Student Teaching Assistant: Investigating an Ethos of Duty in Precision Medicine Research Calls…- Education
- public reception of genetic science
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ELSIconversations ELSICon2022: The All of Us Research Program: What Duties do Researchers Have When Conducting Precision Medicine Research?
Co-Moderators: Johanna Crane, PhD & Mildred Cho, PhD Presenters: Katherine Blizinsky, PhD; Subhashini Chandrasekharan, PhD; Sonya Jooma, MA & Rachel Bailey, ABD Links to…- precision medicine research
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ELSIcon2022 Paper: Mapping Diversity and Equity in Precision Medicine Research: Towards an Ethics of Inclusion
ELSIcon2022 • Paper • June 1, 2022 Sandra Soo-Jin Lee and Janet Shim on behalf of Ethics of Inclusion Study Team This paper draws on our study that takes a research ‘lifecourse’ perspective to…- Live
- Paper
- Recruiting diverse participants to precision medicine research
- genomics research
- Biobanks
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Video
ELSIcon2022 Flash: Distributional Cost-Effectiveness Analysis to Incorporate Health Equity Concerns in the Assessment of the Value of Precision Medicine Technologies
ELSIcon2022 • Flash • May 31, 2022 Cheng Chen, Jeroen Jansen BACKGROUND: Distributional cost-effectiveness analysis (DCEA) has been recently proposed as an intuitive extension of conventional…- Live
- Flash
- tools
- Health Disparities