ELSI FRIDAY FORUM

ELSI Friday Forum Seminar Series

ABOUT ELSI Friday Forum is a monthly one-hour seminar series featuring topics on the ethical, legal, and social implications (ELSI) of genetics and genomics research.  Join us from 12:00-1:00 pm ET…

Spotlight

Genetics and Responsibility: More Complicated Than We’d Thought

Watch the recordings of the symposium here By Erik Parens, PhD and Paul S. Appelbaum, MD

ELSIhub News

Why it is Important to Call Out Racist Language Amongst Our Professional Peers

Recently, on a panel at a conference of a medical professional society, the president of the society used a racist term that is an ethnic slur used to refer to Asians. The speaker did not publicly…

Spotlight

Novel Gene Therapies for Pediatric and Young Adults with Sickle Cell Disease: Engaging Patient and Parent Stakeholders Working Group

Sickle Cell Disease (SCD) is an inherited disorder that results in premature mortality and severe morbidity in millions of afflicted individuals worldwide. Novel therapies are urgently needed and…

Spotlight

A Bigger View: Ingrid Holm on Sharing Research Tools

CERA staff spoke with Ingrid A. Holm, MD, MPH, Professor of Pediatrics, Harvard Medical School, in April about two research instruments she deposited into the Research Tools Database on ELSIhub. Dr.…

Trainee Hub

TraineeHub Resources

This digital collection of ELSI-related resources is intended to provide useful information for ELSI trainees and early career scholars. If you would like submit a resource please email [email protected]

NIH Announcement

All of Us Research Program Releases Tribal Consultation Final Report

NIH to enhance tribal engagement efforts for precision medicine research: Tribal leaders inform All of Us Research Program’s next steps to include tribal communities