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News: ELSI FRIDAY FORUM
Constructing Strategies to Address and Assess Equity, Outreach, and…
Responsible Stewardship: Establishing Standard Data Elements and a…
Indigenizing Genomics and Advancing Indigenous Data Sovereignty
Access to Genetic Screening and Therapies: Case Study of Sickle Cell…
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From collected stamps to hair locks: Ethical and legal implications of testing DNA found on privately owned family artifacts
McKibbin, Shabani, and Larmuseau outline ethical and legal risks associated with artifact DNA testing (artDNA) and recommend screening out artifacts that are likely to generate serious risks and preliminary testing to guide the risk classification and mitigation strategies.
Asbury, McBride, and Bawn review two reports and conclude that policy makers should focus on increasing genetic literacy in the UK through public education and that scientists should continue efforts to increase ancestral diversity in genomic research.
Carroll and colleagues analyze the content of research governance documents from 26 U.S. tribal communities and recommend the addition of explicit requirements for benefit sharing.