In The Spotlight
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Video: Webinar
July 2024 ELSI Friday Forum: Assessing and Reimagining the Role of ELSI in Creating Transformative Science
How can ELSI center justice in science to promote to transformative outcomes? Since its inception, ethical, legal, and social implications (ELSI)… -
News: Announcement
New 5th ELSI Congress Special Issue of AJOB Empirical Bioethics
We are pleased to announce the publication of a special issue of the AJOB Empirical Bioethics. This special issue includes four primary research… -
Video: Webinar
ELSIconversations - Pharmacogenomic Testing (PGx) in Psychiatric Care: Exploring Ethical and Regulatory Frontiers, Session 2
Session title: Exploring Ethical, Equity, and Regulatory Implications for Pharmacogenomics in Psychiatric Care Settings Duke Margolis Institute for…
Upcoming Events
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Sep 18 - 21
Conference
ASBH 26th Annual Conference
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Nov 5 - 9
Conference
ASHG Annual Meeting 2024
In the Media
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MIT Technology Review
Why we need safeguards against genetic discrimination
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STAT News & Undark Magazine
The untold story of the Human Genome Project: How one man’s DNA became a pillar of genetics
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Bloomsberg Businessweek
The DNA Test Delusion
ELSIhub Featured News
New Publications
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Journal Article
"I just assumed this was already being done": Canadian patient preferences for enhanced data sharing for precision oncology
by Samantha Pollard, Morgan Ehman, Anna Hermansen, Deirdre Weymann, Emanuel Krebs, Cheryl Ho, Howard J. Lim, Steven Jones, Yvonne Bombard, Timothy P. Hanna, Chiquita Hessels, Holly Longstaff, Robert Cook-Deegan, Tania Bubela, & Dean A. Regier
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Journal Article
Genomic sequencing in newborn screening: Balancing consent with the right of the asymptomatic at- risk child to be found
by Bartha Maria Knoppers, Ana Eliza Bonilha, Anne-Marie Laberge, Arzoo Ahmed, & Ainsley J. Newson
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Journal Article
Charting a landmark-driven path forward for population genetics and ancient DNA research in Africa
by Elizabeth A. Sawchuk, Kendra A. Sirak, Fredrick K. Manthi, Emmanuel K. Ndiema, Christine A. Ogola, Mary E. Prendergast, David Reich, Eva Aluvaala, George Ayodo, Lamine Badji, Nancy Bird, Wendy Black, Rosa Fregel, Njeri Gachihi, Victoria E. Gibbon, Agness Gidna, Steven T. Goldstein, Reem Hamad, Hisham Y. Hassan, Vanessa M. Hayes, Garrett Hellenthal, Solomon Kebede, Abdikadir Kurewa, Chapurukha Kusimba, Elizabeth Kyazike, Paul J. Lane, Scott MacEachern, Diyendo Massilani, Emma Mbua, Alan G. Morris, Christina Mutinda, Freda Nkirote M’Mbogori, Austin W. Reynolds, Sarah Tishkoff, Miguel Vilar, & Getnet Yimer
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Latest Conference
Genomics Research and Childhood Obesity through the Lenses of Equity: Reassessing Responsibilities and Costs between Families and Society
ELSIcon2024 • Paper • June 12, 2024 Authors: Speaker: Ilaria Galasso, PhD - Technical University of Munich (Germany)