In The Spotlight
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News: Article
GURU: A Unique ELSI Pipeline Program for Students with Disabilities
Because ELSI is not confined to a single academic discipline or institutional home, pipeline programs that provide training for an ELSI research… -
Video: Webinar
October 2024 ELSI Friday Forum: The Summer internship for INdigenous peoples in Genomics – Beyond Settler Science
Scientists from dominant genomic institutions are beginning to recognize the ways in which they have been and continue to be non-inclusive and… -
Video: Webinar
September 2024 ELSI Friday Forum: Enhancing Access for Historically Marginalized Populations using the Translational Genomics Pipeline
In an era where genomic medicine promises to transform healthcare with cutting-edge treatments and personalized care, it is crucial to ensure these…
Upcoming Events
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Dec 12 - 13
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Jan 11
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Sep 17 - 19
Conference
Precision Genomics for Human Health
In the Media
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The Atlantic
Genetic Discrimination is Coming for Us All
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The New York Times
Life Without Sickle Cell Beckons Boy Who Completed Gene Therapy
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MIT Technology Review
Why we need safeguards against genetic discrimination
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STAT News & Undark Magazine
The untold story of the Human Genome Project: How one man’s DNA became a pillar of genetics
ELSIhub Featured News
New Publications
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Journal Article
Negative results from DNA-based population screening for adult-onset diseases: The recipients' experience
by Felicia Russo, Debanjana Chatterjee, Natalia DeMaria, Michelle E. Florido, Maddalena Marasa, Maya Sabatello, Julia Wynn, & Hila Milo Rasouly
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Journal Article
The key features of a genetic nondiscrimination policy: A Delphi consensus statement
by Diya Uberoi, Gratien Dalpé, Katherine Cheung, Emma Kondrup, Nicole Palmour, Thalia Arawi, Mykhailo Arych, Miguel A. Ramiro Aviles, Carmen Ayuso, Heidi B. Bentzen, Katherine Blizinsky, Yvonne Bombard, Subhashini Chandrasekharan, Brian Hon Yin Chung, Aisling de Paor, Megan Doerr, Edward S. Dove, Charles Dupras, Palmira Granados-Moreno, Dov Greenbaum, Hrefna D. Gunnarsdóttir, Hazar Haidar, Chih-Hsing Ho, Saumya S. Jamuar, Hannah Kim, Audrey Lebret, Angus Macdonald, Timo Minssen, Jamal Nasir, Dianne Nicol, Pilar Nicolás, Margaret Otlowski, Athira P. S. Nair, Anya E. R. Prince, Mark Rothstein, Rosalyn Ryan, Guillaume Sillon, Kshitij K. Singh, Ian Stedman, Jane Tiller, Ine Van Hoyweghen, Ma'n H Zawati, & Yann Joly
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Journal Article
Equitable community-based participatory research engagement with communities of color drives All of Us Wisconsin genomic research priorities
by Suma K Thareja, Xin Yang, Paramita Basak Upama, Aziz Abdullah, Shary Pérez Torres, Linda Jackson Cocroft, Michael Bubolz, Kari McGaughey, Xuelin Lou, Sailaja Kamaraju, Sheikh Iqbal Ahamed, Praveen Madiraju, Anne E Kwitek, Jeffrey Whittle, & Zeno Franco
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Latest Webinar
October 2024 ELSI Friday Forum: The Summer internship for INdigenous peoples in Genomics – Beyond Settler Science
Scientists from dominant genomic institutions are beginning to recognize the ways in which they have been and continue to be non-inclusive and harmful to marginalized communities…