In The Spotlight
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Video: Webinar
October 2024 ELSI Friday Forum: The Summer internship for INdigenous peoples in Genomics – Beyond Settler Science
Scientists from dominant genomic institutions are beginning to recognize the ways in which they have been and continue to be non-inclusive and… -
Video: Webinar
September 2024 ELSI Friday Forum: Enhancing Access for Historically Marginalized Populations using the Translational Genomics Pipeline
In an era where genomic medicine promises to transform healthcare with cutting-edge treatments and personalized care, it is crucial to ensure these… -
Video: Webinar
ELSIconversations - Pharmacogenomic Testing (PGx) in Psychiatric Care: Exploring Ethical and Regulatory Frontiers, Session 2
Session title: Exploring Ethical, Equity, and Regulatory Implications for Pharmacogenomics in Psychiatric Care Settings Duke Margolis Institute for…
Upcoming Events
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Dec 12 - 13
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Dec 13
ELSI Friday Forum
ELSI Friday Forum | Building a Diverse ELSI Workforce: What does this…
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Sep 17 - 19
Conference
Precision Genomics for Human Health
In the Media
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The Atlantic
Genetic Discrimination is Coming for Us All
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The New York Times
Life Without Sickle Cell Beckons Boy Who Completed Gene Therapy
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MIT Technology Review
Why we need safeguards against genetic discrimination
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STAT News & Undark Magazine
The untold story of the Human Genome Project: How one man’s DNA became a pillar of genetics
ELSIhub Featured News
New Publications
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Journal Article
Use of prenatal exome sequencing: Opinion statement of the French Federation of Human Genetics Working Group
by Guillaume Cogan, Marie-Bérengère Troadec, Françoise Devillard, Marie-Hélène Saint-Frison, David Geneviève, François Vialard, Emmanuelle Rial-Sebbag, Delphine Héron, Tania Attie-Bitach, Alexandra Benachi, & Pascale Saugier-Veber
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Journal Article
Un/Diagnosed: Family experience of genomic diagnoses and the re-making of (rare) disease in the UK
by Alessia Costa
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Journal Article
Synthetic health data: Real ethical promise and peril
by Daniel Susser, Daniel S Schiff, Sara Gerke, Laura Y Cabrera, I Glenn Cohen, Megan Doerr, Jordan Harrod, Kristin Kostick-Quenet, Jasmine McNealy, Michelle N Meyer, W Nicholson Price II, & Jennifer K Wagner
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Latest Webinar
November 2024 EFF: Material (Mis)Identities: Art, Genes and Ethics
How can genetically-incorporated art examine, highlight, and challenge existing social constructs such as the formation of racial identity? This ELSI Friday Forum explored this…