In The Spotlight
News: ELSI FRIDAY FORUM
ELSI Friday Forum Seminar Series
Video: Webinar
Genetics and AI: Group Privacy and Fairness
News: Spotlight
The Genetic Discrimination Observatory: A Key Global Resource in Addressing Genetic Discrimination
News: ELSIconversations
Exploring Difference in the Biology Classroom
Upcoming Events
Workshop
Workshop on Returning Individual Genomic Results: Considerations for…
Seminar
Day 5 | Ask a Family Member
Webinar
Digital twins and virtual patients: Ethics of representation for…
Webinar
Genetic Advantages in Sports: When Do They Count as "Doping…
In the Media
The New York Times
The Disease Took Zara, Then Sara. Could Ayla Be Saved?
The New York Times
Gene Treatment for Rare Epilepsy Causes Brain Side Effect in 2 Children
The New York Times
Nobel Prize Awarded to Scientist Who Sequenced Neanderthal Genome
The New York Times
Your Doppelgänger Is Out There and You Probably Share DNA With Them
New Publications
Dobbs and the future of health data privacy for patients and healthcare organizations
Clayton, Embí, and Malin describe how state laws that limit or ban abortion may result in new threats to health information security and outline policy options.
Establishing a blockchain-enabled Indigenous data sovereignty framework for genomic data
Mackey and colleagues describe how Indigenous data sovereignty (IDS) principles could be operationalized with blockchain technology.
Should health systems share genetic findings with at-risk relatives when the proband is deceased? Interviews with individuals diagnosed with Lynch syndrome
The consensus among the participants interviewed by Hunter and colleagues was that health systems should inform relatives of genetic findings following a patient’s death; should deliver them a few months after, but within a year; and have a knowledgeable professional share the information.
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