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March EFF flyer with speaker headshots
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ELSI FRIDAY FORUM
Date

ELSI Friday Forum Seminar Series

ABOUT

ELSI Friday Forum is a monthly one-hour seminar series featuring topics on the ethical, legal, and social implications (ELSI) of genetics and genomics research.  Join us from 12:00-1:00 pm ET / 9:00-10:00 am PT on the second Friday of each month for talks and panels on a broad array of issues, explored through an ELSI lens.

Each hour-long forum will be immediately followed by a half-hour informal networking session for audience members who would like to continue the discussion.  A zoom link to the networking session will be provided in the Zoom Chat before the end of each forum and emailed to all registrants.

Each forum will end with a Q&A with the audience and speakers: please bring your questions, expertise, and opinions to the debate!  For those who cannot attend the live event, each session will be recorded and archived on the ELSIhub Video page (recording links are also available below).


If you have any questions, including requests regarding accessibility, please email [email protected].

Continue the conversation in an informal Post Forum Discussion in a separate Zoom meeting immediately following each Forum. The link will be placed in the Zoom Chat during the Forum. Please email [email protected] if you have any difficulty accessing the link.

For those who cannot attend the live event, the Forum will be recorded and archived on the ELSIhub Video page.

Closed captioning and/or transcripts will be provided for live and recorded events.

By registering for an ELSIhub event, attendees agree to abide by the ELSIhub Code of Conduct: https://elsihub.org/news/code-conduct

 

2021-2022 SERIES

June 17, 2022  Impact of Dobbs Decision on ELSI Research and Practice – Click here to register

  • Speaker details to follow

May 13, 2022  Addressing Algorithmic Harms: Practices and Provocations for Health AI Watch the recording here

  • I. Glenn Cohen, JD (Harvard University)
  • Melissa McCradden, PhD (University of Toronto)
  • Moderated by Kayte Spector-Bagdady, JD (University of Michigan)

April 8, 2022 – Balancing Data Privacy and Data Sharing: Normative and Technical Approaches Watch the recording here

  • Bradley Malin, PhD (Vanderbilt University)
  • Effy Vayena, PhD (ETH Zurich)
  • Moderated by Lucila Ohno-Machado, MD, PhD (UC San Diego)

March 11, 2022 – Autism Genomics Research: Parents’ Views on Genetic Results and Autistic Representation Watch the recording here

  • Julia Wynn, MS, CGC (Columbia University)
  • Holly Tabor, PhD (Stanford University)
  • Moderated by Wendy Chung, MD (Columbia University)

February 11, 2022 Genomic Imaginaries: Sparking Dialogue between ELSI and Literary Studies  Watch the recording here

  • Lara Choksey, PhD (University College London)
  • Lesley Larkin, PhD (Northern Michigan University)
  • Moderated by Rebecca Wilbanks, PhD (Johns Hopkins University)

January 14, 2022  Ensuring Equitable Use of New Genetic Technologies: Lessons from Eugenics – Watch the recording here

  • Emily Klancher Merchant, PhD (University of California, Davis)
  • Lisa Dive, PhD (University of Sydney)
  • Moderated by Osagie Obasogie, JD, PhD (University of California, Berkeley)

December 10, 2021 - New ACMG Guidance on Carrier Screening: More or Less Equitable? Watch the recording here

  • Blair K. Stevens, MS, CGC (University of Texas Health)
  • Katie Stoll, MS, CGC (Genetic Support Foundation)
  • Moderated by Maya Sabatello, LLB, PhD (Columbia University)

November 12, 2021 - Benefit-sharing and Pharmaceutical Development in Africa: What Does Equity Mean? Watch the recording here

  • Nchangwi Munung, PhD (University of Capetown)
  • Michèle Ramsay, PhD (University of the Witwatersand)
  • Moderated by Jantina De Vries, PhD (University of Capetown)

October 8, 2021 - Genomic Data Sharing: Putting Principles and Policy into Practice – Watch the recording here 

  • Heidi Rehm, PhD
  • Keolu Fox, PhD
  • Moderated by Malia Fullerton, PhD

September 10, 2021 - Remembering 9/11: Ethical, Legal and Social Issues with Using DNA for Disaster Victim Identification  Watch the recording here 

  • Amy Mundorff, PhD
  • Jay Aronson, PhD
  • Moderated by Jennifer Wagner, JD, PhD

 

2020-2021 SERIES

July 9, 2021 - Current Legal Challenges to Abortion: Implications for Prenatal Genetics Watch the recording here 

  • Ellen Wright Clayton, MD, JD
  • Marsha Michie, PhD
  • Moderated by Laura Hercher, MA, MS

June 11, 2021 - Ethical Challenges in Novel Gene Therapies for Sickle Cell Disease –  Watch the recording here

  • Liza-Marie Johnson, MD, MPH, MSB
  • Melissa Creary, PhD, MPH
  • Moderated by Pilar Ossorio, JD, PhD

May 14, 2021 - Genomics and Data Sovereignty: Policy and Deliberative Approaches for Engaging Indigenous Communities Watch the recording here

  • Stephanie Russo Carroll, DrPH
  • Justin Lund, MA
  • Moderated by Nanibaa’ Garrison, PhD

April 9, 2021 Widening the Lens: Using Arts in ELSI Research – Watch the recording here

  • Sydney Cheek-O'Donnell, PhD
  • Erin Talati Paquette, MD, JD
  • Erin Rothwell, PhD
  • Moderated by Maya Sabatello, LLB, PhD

March 12, 2021 - Migrant DNA: Context, Ethics and legal Issues - Watch the recording here

  • Sara Katsanis, MS
  • Vera Eidelman, JD
  • Moderated by Paul Appelbaum, MD

February 12, 2021 -  Genomics and Infectious Disease: Scientific and ELSI Issues of COVID - Watch the recording here.

  • Gail Geller, ScD, MHS
  • Priya Duggal, PhD
  • Moderated by Holly Taylor, PhD, MPH

January 8, 2021 - Biobanking in the Era of COVID - Watch the recording here

  • Sara Chandros Hull, PhD
  • Kyle Brothers, MD, PhD
  • Moderated by Aaron Goldenberg, PhD

December 11, 2020 - Addressing Racism in Research and Clinical Practice - Watch the recording here.

  • Rhea Boyd, MD, MPH
  • Robert D. Steiner, MD
  • Daphne Martschenko, PhD
  • Moderated by Mildred Cho, PhD

November 13, 2020 - Structural Racism and Genomics in the Time of COVID - Watch the recording here.

  • Dayna Bowen Matthew, JD, PhD
  • Vence L. Bonham, Jr, JD
  • Moderated by Sandra Soo-Jin Lee, PhD

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