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Instrument for assessing mass media reporting of disease-related genetic discoveries
Instrument for assessing mass media reporting of disease-related genetic discoveries is a 38-item tool for evaluating the quality and balance of media stories reporting genetic discoveries related
- Mountcastle-Shah, E., Tambor, E., Bernhardt, B. A., Geller, G., Karaliukas, R., Rodgers, J. E., & Holtzman, N. A. (2003). Assessing mass media reporting of disease-related genetic discoveries: Development of an instrument and initial findings. Science Communication, 24(4), 458-478.
CSER Phase 1: ClinSeq Study Brochure
This recruitment brochure for the ClinSeq Study provides details about the study rationale, the risks and benefits associated with participation, and the enrollment procedure.
CSER Phase 1: CanSeq Study Brochure
This recruitment brochure for the CanSeq Study provides details about the study rationale and information designed to help adults weigh the risks and benefits associated with participation.
Genomics ADvISER
Genomics ADvISER is a digital decision aid for use in the delivery of genomic counseling. It is intended as a supplement to genomic counseling with a counselor.
Optional Results Choice Aid (ORCA)
The Optional Results Choice Aid (ORCA) is a decision aid to support informed, values based decision-making for adult patients and research participants about the reciept of medically actionable, ad
Plain Text Script, Attitudes about the Ethics of Research on Medical Practices (RoMP)
This plain text script includes descriptions of the three animated videos that were utilized in the ROMP study, which assessed adult patient's attitudes toward research on medical practices in
REVEAL Impact of Genetic Testing in Alzheimer’s Disease (IGT-AD) Scale
Chung and colleagues created the REVEAL Impact of Genetic Testing in Alzheimer’s Disease (IGT-AD) Scale to measure psychological impact of genetic susceptibility testing for Alzheimer disease (AD).
- Chung, W, W., Chen, C. A., Cupples, L. A., Roberts, J. Scott, Hiraki, S. C., Nair, A. K., Green, R. C., & Stern, R. A. (2009). A new scale measuring psychologic impact of genetic susceptibility testing for Alzheimer disease. Alzheimer Disease & Associated Disorders, 23(1), 50-56.