Instrument for assessing mass media reporting of disease-related genetic discoveries is a 38-item tool for evaluating the quality and balance of media stories reporting genetic discoveries related
Mountcastle-Shah, E., Tambor, E., Bernhardt, B. A., Geller, G., Karaliukas, R., Rodgers, J. E., & Holtzman, N. A. (2003). Assessing mass media reporting of disease-related genetic discoveries: Development of an instrument and initial findings. Science Communication, 24(4), 458-478.
- Mountcastle-Shah, E., Tambor, E., Bernhardt, B. A., Geller, G., Karaliukas, R., Rodgers, J. E., & Holtzman, N. A. (2003). Assessing mass media reporting of disease-related genetic discoveries: Development of an instrument and initial findings. Science Communication, 24(4), 458-478.
The brochure, developed by North Carolina Genomic Evaluation by Next-generation Exome Sequencing (NCGENES), describes Whole Exome Sequencing (WES) and six types of non-medically actionable incident
The brochure, developed by North Carolina Genomic Evaluation by Next-generation Exome Sequencing (NCGENES), includes information about whole exome sequencing (WES), the three types of incidental in
Genomics ADvISER is a digital decision aid for use in the delivery of genomic counseling. It is intended as a supplement to genomic counseling with a counselor.
Shickh, S., Rafferty, S. A., Clausen, M., Kodida, R., Mighton, C., Panchal, S., & Bombard, Y., Lorentz, J., Ward, T., Watkins, N., Elser, C., Eisen, A., Carroll, J. C., Glogowski, E., Schrader, K. A., Lerner-Ellis, J., Kim, R. H., Chitayat, D., Shuman, C., Bombard, Y., and Incidental Genomics Study Team (2021). The role of digital tools in the delivery of genomic medicine: Enhancing patient-centered care. Genetics in Medicine, 23(6), 1-9.
The study brochure for the BASIC3 Study, funded by the NHGRI, is an easy to read description of the study purpose, eligibility requirements, and study procedures.
The Assessment of Strategic Integration of Genomics across Nursing (ASIGN) maturity matrix (MM) is a self-assessment tool that enables users to asesses the progress of their country, city, or organ
Tonkin, E., Calzone, K. A., Badzek, L., Benjamin, C., Middleton, A., Patch, C., Kirk, M., & Nur, D.
(2020). A maturity matrix for nurse leaders to facilitate and benchmark progress in genomic healthcare policy, infrastructure, education, and delivery. Journal of Nursing Scholarship, 52(5), 583-592.
The Optional Results Choice Aid (ORCA) is a decision aid to support informed, values based decision-making for adult patients and research participants about the reciept of medically actionable, ad
Freed, A. S., Gruß, I., McMullen, C. K., Leo, M. C., Kauffman, T. L., Porter, K. M., Muessig, K. R., Eubanks, D., Goddard, K. A. B., Wilfond, B. S., & Liles, E. G. (2021). A decision aid for additional findings in genomic sequencing: Development and pilot testing. Patient Education and Counseling, 104(5), 960-968.
This plain text script includes descriptions of the three animated videos that were utilized in the ROMP study, which assessed adult patient's attitudes toward research on medical practices in
Kelley, M., James, C., Alessi Kraft, S., Korngiebel, D., Wijangco, I., Rosenthal, E., Joffe, S., Cho, M. K., Wilfond, B., Lee, S. S. (2015). Patient perspectives on the learning health system: The importance of trust and shared decision making. Am J Bioeth, 15(9), 4-17.