Discover data collection instruments and related materials in the Research Tools database. Please see our FAQ to learn more and email us at [email protected] to contribute your published or unpublished research tools.

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Instrument for assessing mass media reporting of disease-related genetic discoveries

Author(s): Mountcastle-Shah, Eliza, Tambor, Ellen, Bernhardt, Barbara A., Geller, Gail, Karaliukas, Reda, Rodgers, Joann Ellison, Holtzman, Neil A.
Year: 2002

Instrument for assessing mass media reporting of disease-related genetic discoveries is a 38-item tool for evaluating the quality and balance of media stories reporting genetic discoveries related

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Instrument for assessing mass media reporting of disease-related genetic discoveries is a 38-item tool for evaluating the quality and balance of media stories reporting genetic discoveries related to human disease.

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Research Population: N/A
Citation:

Mountcastle-Shah, E., Tambor, E., Bernhardt, B. A., Geller, G., Karaliukas, R., Rodgers, J. E., & Holtzman, N. A. (2003). Assessing mass media reporting of disease-related genetic discoveries: Development of an instrument and initial findings. Science Communication, 24(4), 458-478.

Validation(s):
  • Mountcastle-Shah, E., Tambor, E., Bernhardt, B. A., Geller, G., Karaliukas, R., Rodgers, J. E., & Holtzman, N. A. (2003). Assessing mass media reporting of disease-related genetic discoveries: Development of an instrument and initial findings. Science Communication, 24(4), 458-478.
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Assessment of Strategic Integration of Genomics across Nursing (ASIGN) Maturity Matrix

Author(s): Tonkin, Emma, Calzone, Kathleen A., Badzek, Laurie, Benjamin, Caroline, Middleton, Anna, Patch, Christine, Kirk, Maggie, Nur, Dip
Year: 2020

The Assessment of Strategic Integration of Genomics across Nursing (ASIGN) maturity matrix (MM) is a self-assessment tool that enables users to asesses the progress of their country, city, or organ

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The Assessment of Strategic Integration of Genomics across Nursing (ASIGN) maturity matrix (MM) is a self-assessment tool that enables users to asesses the progress of their country, city, or organization on the integration of genomics into nursing.

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Research Population: Adults
Citation:

Tonkin, E., Calzone, K. A., Badzek, L., Benjamin, C., Middleton, A., Patch, C., Kirk, M., & Nur, D.
(2020). A maturity matrix for nurse leaders to facilitate and benchmark progress in genomic healthcare policy, infrastructure, education, and delivery. Journal of Nursing Scholarship, 52(5), 583-592.

Contact: [email protected]

Plain Text Script, Attitudes about the Ethics of Research on Medical Practices (RoMP)

Author(s): Kelley, Maureen, James, Cyan, Kraft, Stephanie Alessi, Korngiebel, Diane, Wijangco, Isabelle, Rosenthal, Emily, Joffee, Steven, Cho, Mildred K., Wilfond, Benjamin, Lee, Sandra Soo-Jin
Year: 2015

This plain text script includes descriptions of the three animated videos that were utilized in the ROMP study, which assessed adult patient's attitudes toward research on medical practices in

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This plain text script includes descriptions of the three animated videos that were utilized in the ROMP study, which assessed adult patient's attitudes toward research on medical practices in the context of usual care.

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Research Population: Adults
Citation:

Kelley, M., James, C., Alessi Kraft, S., Korngiebel, D., Wijangco, I., Rosenthal, E., Joffe, S., Cho, M. K., Wilfond, B., Lee, S. S. (2015). Patient perspectives on the learning health system: The importance of trust and shared decision making. Am J Bioeth, 15(9), 4-17.

Contact: [email protected]
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Information About Genomic Databases, Video Transcript

Author(s): Briscoe, Forrest, Ajunwa, Ifeoma, Gaddis, Allison, McCormick, Jennifer
Year: 2020

Briscoe and colleagues primed repondents ahead of a survey that assessed public attitudes toward genomic data by providing them with information about genomic databases via a 3-minute video.

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Briscoe and colleagues primed repondents ahead of a survey that assessed public attitudes toward genomic data by providing them with information about genomic databases via a 3-minute video. The video transcript includes factual information focused on the commercial value of personal information (including genomic sequence data) and privacy risks for individuals providing data. The video was followed by 3 comprehension assessment questions.

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Research Population: Adults
Citation:

Briscoe, F., Ajunwa, I., Gaddis, A., & McCormick, J. (2020). Evolving public views on the value of one’s DNA and expectations for genomic database governance: Results from a national survey. PloS One, 15(3), e0229044.

Contact: [email protected]
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The IntegratedEthics Facility Workbook

Author(s): Pearlman, Robert A., Bottrell, Melissa M., Foglia, Mary Beth, Fox, Ellen
Year: 2013

The IntegratedEthics Facility Workbook (IEFW), created by the National Center for Ethics in Health Care, is an evaluation tool that helps health care facilities improve ethical practices and track

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The IntegratedEthics Facility Workbook (IEFW), created by the National Center for Ethics in Health Care, is an evaluation tool that helps health care facilities improve ethical practices and track progress.

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Research Population: Adults
Citation:

Bottrell, M. M., Pearlman, R. A., Foglia, M. B., & Fox, E. (2013). The IntegratedEthicsTM facility workbook: An evaluation tool to support health care ethics program implementation and quality management. AJOB Primary Research, 4(1), 59-70.

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