Instrument for assessing mass media reporting of disease-related genetic discoveries is a 38-item tool for evaluating the quality and balance of media stories reporting genetic discoveries related
Mountcastle-Shah, E., Tambor, E., Bernhardt, B. A., Geller, G., Karaliukas, R., Rodgers, J. E., & Holtzman, N. A. (2003). Assessing mass media reporting of disease-related genetic discoveries: Development of an instrument and initial findings. Science Communication, 24(4), 458-478.
The Assessment of Strategic Integration of Genomics across Nursing (ASIGN) maturity matrix (MM) is a self-assessment tool that enables users to asesses the progress of their country, city, or organ
Tonkin, E., Calzone, K. A., Badzek, L., Benjamin, C., Middleton, A., Patch, C., Kirk, M., & Nur, D.
(2020). A maturity matrix for nurse leaders to facilitate and benchmark progress in genomic healthcare policy, infrastructure, education, and delivery. Journal of Nursing Scholarship, 52(5), 583-592.
This plain text script includes descriptions of the three animated videos that were utilized in the ROMP study, which assessed adult patient's attitudes toward research on medical practices in
Kelley, M., James, C., Alessi Kraft, S., Korngiebel, D., Wijangco, I., Rosenthal, E., Joffe, S., Cho, M. K., Wilfond, B., Lee, S. S. (2015). Patient perspectives on the learning health system: The importance of trust and shared decision making. Am J Bioeth, 15(9), 4-17.
Briscoe and colleagues primed repondents ahead of a survey that assessed public attitudes toward genomic data by providing them with information about genomic databases via a 3-minute video.
Briscoe, F., Ajunwa, I., Gaddis, A., & McCormick, J. (2020). Evolving public views on the value of one’s DNA and expectations for genomic database governance: Results from a national survey. PloS One, 15(3), e0229044.
Vignette for Exploring the Importance of Shared Decision Making about Genomic Research Participation
Bukini and colleagues designed the vignette used in theis study to explore the importance of shared decision making about research participation in Ghana and Cameroon.
Bukini, D., deVries, J., Treadwell, M., Anie, K., Dennis-Antwi, J., Kamga, K. K., McCurdy, S., Ohene-Frempong, K., Makani, J., & Wonkam, A. (2020). Exploring the role of shared decision making in the consent process for pediatric genomics research in Cameroon, Tanzania and Ghana. AJOB Empirical Bioethics, 10(3).