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Koplin and colleagues propose a moral framework for evaluating informed consent models and conclude that, in the context of genomic sequencing technologies, appropriately (rather than fully) informed consent can promote autonomy, well-being, and trust in medicine.
Courtright-Lim presents a decision tree to help guide self-regulation of basic research using germline editing with CRISPR.
Preparing newborn screening for the future: A collaborative stakeholder engagement exploring challenges and opportunities to modernizing the newborn screening system
The future of newborn screening (NBS) will depend on the ability of the current system to adapt to increased demands resulting from advances in gene therapies. Andrews and colleagues convened NBS experts to identify barriers and potential solutions to modernizing the NBS system.