Explore our curated collection of resources including top publication outlets for ELSI scholars, Centers of Excellence in ELSI Research, ELSI databases and research centers, genome research consortia, statutes and legislation related to genomics, and bioethics resources.
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This ASRM Ethics Committee opinion published in 2018 offers key points to consider in the determination of the ethical permissibility of PGT-M for adult-onset conditions.
TAGS:
- ethics committee opinion
- preimplantation genetic testing
- PGT
- monogenic defects
- American Society for Reproductive Medicine
- ASRM
- adult-onset conditions
This policy statement, released in March 2013 and reaffirmed in June 2018, contains recommendations on the genetic testing and screening of children developed collaboratively the American Academy of Pediatrics and the American College of Medical Genetics and Genomics.
TAGS:
- policy statement
- genetic testing
- Genetic Screening
- Children
- American Academy of Pediatrics
- AAP
- American College of Medical Genetics and Genomics
- AMCG
This technical report, authored by Laine Friedman Ross, Howard M. Saal, Karen L. David, Rebecca R. Anderson, the American Academy of Pediatrics, and the American College of Medical Genetics and Genomics, outlines the ethical justification and cites empirical data in support of the proposed policy recommendations of the AAP and ACMG regarding genetic testing in children.
TAGS:
- technical report
- genetic testing
- Genetic Screening
- Children
- American Academy of Pediatrics
- AAP
- American College of Medical Genetics and Genomics
- AMCG
This ASRM Ethics Committee Report published in 2019 highlights the need for shared information in the consent process, addresses preferences expressed by donors over who should receive their gametes and embryos, and considers the responsibilities that donors have to their own families, to recipient families, and to children conceived with their gametes and embryos.
TAGS:
- ethics committee opinion
- embryo donation
- gamete donation
- American Society for Reproductive Medicine
- ASRM
This educational resource offers a summary of some United States (federal) laws and some specific state laws that offer a variety of legal protections related to genetic/omic and mobile/digital health-related information. It was created as part of the "Consumer Protections for Genomics & Precision Health" project funded by NHGRI Grant No. R01HG011051 in September 2022 (except for a few updates made in June 2023 that are noted).
TAGS:
- Jennifer K. Wagner
- NHGRI
- GINA
- HIPAA
- genetic privacy
This educational resource offers a summary of some United States (federal) laws and some specific state laws that offer a variety of legal protections related to genetic/omic and mobile/digital health-related information. It was created as part of the "Consumer Protections for Genomics & Precision Health" project funded by NHGRI Grant No. R01HG011051 in September 2022 (except for a few updates made in June 2023 that are noted).
TAGS:
- Jennifer K. Wagner
- NHGRI
- GINA
- HIPAA
- genetic privacy
This educational resource offers a summary of some United States (federal) laws and some specific state laws that offer a variety of legal protections related to genetic/omic and mobile/digital health-related information. It was created as part of the "Consumer Protections for Genomics & Precision Health" project funded by NHGRI Grant No. R01HG011051 in September 2022 (except for a few updates made in June 2023 that are noted).
TAGS:
- Jennifer K. Wagner
- NHGRI
- GINA
- HIPAA
- genetic privacy
This educational resource offers a summary of some United States (federal) laws and some specific state laws that offer a variety of legal protections related to genetic/omic and mobile/digital health-related information. It was created as part of the "Consumer Protections for Genomics & Precision Health" project funded by NHGRI Grant No. R01HG011051 in September 2022 (except for a few updates made in June 2023 that are noted).
TAGS:
- Jennifer K. Wagner
- NHGRI
- GINA
- HIPAA
- genetic privacy
This educational resource offers a summary of some United States (federal) laws and some specific state laws that offer a variety of legal protections related to genetic/omic and mobile/digital health-related information. It was created as part of the "Consumer Protections for Genomics & Precision Health" project funded by NHGRI Grant No. R01HG011051 in September 2022 (except for a few updates made in June 2023 that are noted).
TAGS:
- Jennifer K. Wagner
- NHGRI
- GINA
- HIPAA
- genetic privacy
This educational resource offers a summary of some United States (federal) laws and some specific state laws that offer a variety of legal protections related to genetic/omic and mobile/digital health-related information. It was created as part of the "Consumer Protections for Genomics & Precision Health" project funded by NHGRI Grant No. R01HG011051 in September 2022 (except for a few updates made in June 2023 that are noted).
TAGS:
- Jennifer K. Wagner
- NHGRI
- GINA
- HIPAA
- genetic privacy