Skip to main content

Explore our curated collection of resources including top publication outlets for ELSI scholars, Centers of Excellence in ELSI Research, ELSI databases and research centers, genome research consortia, statutes and legislation related to genomics, and bioethics resources.

61 - 70 of 1099 Additional Resources

  • A stop-loss carrier must offer coverage to all employees and dependents of employees of a small employer to which it issues a stop-loss insurance policy and may not exclude any employee or dependent on the basis of an actual or expected health status-related factor, including genetic information. Approved by the Governor October 1, 2013. Bill Status: Enacted

    • state bill
    • bill
    • stop-loss insurance
    • insurance policy
    • genetic discrimination
    • genetic information
    • bill status enacted
    • health insurance nondiscrimination

  • This bill states that it is the intent of the Legislature to enact legislation to protect individuals from the unauthorized use of their genetic information, ensure that genetic information is personal information that is not collected, stored, or disclosed without the individual's authorization, provide protections for the collection, storage, and authorized use of genetic information, and promote the use of genetic information for legitimate reasons, including, but not limited to, health care, research, advancement of medicine, and educational purposes, as the field of genomics advances. Died. Bill Status: Died

    • state bill
    • bill
    • genetic information
    • DNA sample
    • genetic test results
    • biosamples
    • Privacy
    • written authorization
    • California
    • bill status died

  • This bill provides that in a claim of discrimination or retaliation based on genetic information, the person claiming to have been aggrieved prevails if he or she has proven that a protected characteristic or activity was a substantial motivating factor in the employment action or decision. Consideration of Governor's veto stricken from file 2/27/2014. Bill Status: Vetoed

    • state bill
    • bill
    • genetic discrimination
    • genetic information
    • California
    • bill status vetoed
    • employment nondiscrimination

  • Requires every health care service plan contract, except a specialized health care service plan contract, to provide coverage for genetic testing for hereditary nonpolyposis colorectal cancer (HNPCC) under certain circumstances. Died. Bill Status: Died

    • genetic testing
    • state bill
    • bill
    • California
    • Hereditary Disease
    • hereditary nonpolyposis colorectal cancer
    • HNPCC
    • Cancer
    • insurance coverage
    • bill status died

  • Requires a health care service plan contract or a health insurance policy that is issued, amended, or renewed on or after January 1, 2015, to provide coverage for genetic testing for Lynch syndrome. Died. Bill Status: Died

    • state bill
    • bill
    • California
    • insurance policy
    • genetic testing
    • genetic testing coverage
    • Lynch syndrome
    • bill status died
    • health insurance coverage

  • A health benefit plan offered to a small employer, as defined in Section 1304(b) of PPACA and in Section 10753, may not establish rules for eligibility, including continued eligibility, of an individual, or dependent of an individual, to enroll under the terms of the plan based on health status-related factors, including genetic information. Approved by the Governor June 28, 2014. Bill Status: Enacted

    • state bill
    • bill
    • California
    • genetic information
    • health benefit plan
    • genetic discrimination
    • health-status related factors
    • bill status enacted
    • employment nondiscrimination

  • States that a newborn sample may not be used for medical research if a parent or guardian of the newborn child objects to the testing program. The bill would require the department to provide information about the testing program, and to obtain a form signed by the parent or guardian acknowledging receiving information regarding the storage, retention, and use of the newborn child’s blood sample for medical research. Died. Bill Status: Died

    • state bill
    • bill
    • California
    • newborn blood sample
    • medical research
    • parental consent
    • Informed Consent
    • bill status died

  • Amends state law prohibiting denial of full and equal access to benefits or discrimination in any program or activity that is conducted, operated, or administered by the state or by any state agency, is funded directly by the state, or receives any financial assistance from the state based on genetic information and other characteristics. The bill would remove the authority of those state agencies to promulgate regulations to prohibit discrimination and would require the investigation and enforcement of anti-discrimination provisions to be performed by to the Department of Fair Employment and Housing. Chaptered on 9/30/2016. However, the bill is effective on January 1, 2017 only if AB 2707, which pertains to racial profiling, is enacted. On 9/27/2016 the Governor vetoed AB 2707. Bill Status: Enacted

    • state bill
    • bill
    • California
    • genetic information
    • genetic discrimination
    • nondiscrimination
    • bill status enacted
    • employment nondiscrimination
    • health insurance nondiscrimination

  • Requires the State Department of Health Care Services to provide individuals diagnosed with breast cancer information relating to breast cancer susceptibility gene (BRCA) mutations. The goal is to help achieve increased genetic counseling and screening rates of individuals for whom BRCA test results can inform treatment decisions. 10/12/2017 Chaptered by Secretary of State - Chapter 693, Statutes of 2017. Bill Status: Enacted

    • state bill
    • bill
    • California
    • breast cancer
    • Cancer
    • BRCA
    • gene mutation
    • Genetic Counseling
    • Genetic Screening
    • BRCA test

  • Grants consumers the right to request a business to disclose the categories and specific pieces of personal information that it collects about the consumer; the categories of sources from which that information is collected; the business purposes for collecting or selling the information; and the categories of 3rd parties with which the information is shared. Biometric information, which is defined to include DNA, is considered personal information. Note: AB 375 was amended in June of 2018. Earlier versions of the bill do not address biometric information, including DNA. June 28, 2018 Signed by the Governor. Bill Status: Enacted

    • state bill
    • bill
    • California
    • biometric information
    • DNA
    • personal information
    • bill status enacted
    • Privacy