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Explore our curated collection of resources including top publication outlets for ELSI scholars, Centers of Excellence in ELSI Research, ELSI databases and research centers, genome research consortia, statutes and legislation related to genomics, and bioethics resources.

11 - 20 of 32 Additional Resources

  • This NIH website provides answers to frequently asked questions about the 2023 DMS policy such as those about sharing qualitative data, how noncompliance will be handled, protection of research participants, and other topics.

    • 2023 NIH Data Management and Sharing Policy
    • data sharing
    • qualitative data
    • compliance

  • This NIH webinar provides guidance on privacy protections for human subjects and considers the interaction of the 2023 DMS policy with the NIH Genomic Data Sharing Policy

    • Genomic Data Sharing Policy
    • 2023 NIH Data Management and Sharing Policy
    • data sharing
    • National Institutes of Health (NIH)
    • webinar

  • This slide deck, which covers the informed consent process, harmonization of the 2023 DMS policy with the NIH Genomic Data Sharing Policy, sharing of American Indian/ Alaska Native participant data, and other topics, was presented in Part 2 of the Conversations with NIH Webinar Series.

    • 2023 NIH Data Management and Sharing Policy
    • data sharing
    • National Institutes of Health (NIH)
    • Genomic Data Sharing Policy

  • This NIH website lists and provides full-text links to all notices related to data sharing, such as, for example, the final NIH 2023 DMS policy, a notice pertaining to management and sharing of American Indian/ Alaska Native participant data, allowable data management and sharing costs, etc.

    • 2023 NIH Data Management and Sharing Policy
    • data sharing
    • National Institutes of Health (NIH)

  • This collection of resources, which includes a recorded meeting, pre-award administrator guidance, brief descriptions of the NIH 2023 DMS policy, and compliance guidance, was compiled by the Research Management Group of Stanford University School of Medicine.

    • 2023 NIH Data Management and Sharing Policy
    • data sharing
    • National Institutes of Health (NIH)
    • Stanford University
    • compliance

  • This PDF download created by the Stanford University Office of Research Data Governance and Privacy outlines the core elements of the policy, a Data Management Plan, allowable costs, etc.

    • 2023 NIH Data Management and Sharing Policy
    • data sharing
    • National Institutes of Health (NIH)
    • Stanford University

  • This NIH website details the Data Sharing and Management Plan format, discusses each element of the plan, and provides 4 sample plans.

    • 2023 NIH Data Management and Sharing Policy
    • data sharing
    • National Institutes of Health (NIH)

  • This NIH website provides short descriptions and links to the data sharing policies of institutes, centers, and research programs that exist in addition to the trans-NIH data sharing policies.

    • 2023 NIH Data Management and Sharing Policy
    • data sharing
    • National Institutes of Health (NIH)

  • Read an overview of the full 2023 NIH Data Management and Sharing policy and download a simplified version.

    • 2023 NIH Data Management and Sharing Policy
    • data sharing
    • National Institutes of Health (NIH)

  • Find the NIH notice about implementation of the 2023 DMS policy.

    • 2023 NIH Data Management and Sharing Policy
    • data sharing
    • National Institutes of Health (NIH)