Explore our curated collection of resources including top publication outlets for ELSI scholars, Centers of Excellence in ELSI Research, ELSI databases and research centers, genome research consortia, statutes and legislation related to genomics, and bioethics resources.
This NIH website explains the possible financial costs of data sharing and how to budget them in an application for funding.
TAGS:
The QDS project team at Washington University School of Medicine in St. Louis has developed the QDS Toolkit to support researchers in planning for and sharing qualitative data in an ethical manner. The Toolkit includes a planning guide that provides guidance and key considerations for research project planning, data collection and management, and sharing qualitative data. Additionally, there is information on the new Qualitative De-identification Support (QuaDS) Software, which improves the quality and length of time needed to de-identify data.
TAGS: