1 - 10 of 244

News

All of Us Research Program Seeks Input on Environmental Health Data

The National Institutes of Health’s All of Us Research Program has issued a Request for Information (RFI) to gather public suggestions on integrating environmental health data into its platform for…

News

SNAPSHOTs: Expanding ELSI Education

Announcing the Personal Genetics Education Project (pgEd) / CERA Partnership For over a decade, Marnie Gelbart, Ph.D., Director of Programs at the Personal Genetics Education Project (pgEd) in the…

News

ELSI in Review • May 2022

About this listing ELSI in Review is a listing of recently published, systematic reviews of the literature on key ELSI topics curated by CERA staff. Our May 2022 set explores person-centered…

News

ELSI in Review • April 2022

About this listing ELSI in Review is a listing of recently published, systematic reviews of the literature on key ELSI topics curated by CERA staff. Our April 2022 set explores carrier screening,…

News

Value Ethics: Mapping Strategies for Value Assessment and Reimbursement of Targeted Genomic Therapies for Rare Diseases – A New CERA Working Group

CERA Working Groups are interdisciplinary teams that aim to deepen our understanding of emerging, high priority, or understudied ELSI issues using innovative approaches.  CERA selects one or two…

News

ELSI in Review • March 2022

About this listing ELSI in Review is a listing of recently published, systematic reviews of the literature on key ELSI topics curated by CERA staff. Our March 2022 set explores rare genetic diseases…

News

New ELSIconversations with the Ancestry and Diversity Working Group of ClinGen

The Ancestry and Diversity Working Group (ADWG) of the Clinical Genome Resource (ClinGen) was founded in 2017, with the goal of providing guidance about how population descriptors such as race,…

News

Should I Submit This Paper to the American Journal of Bioethics? CERA Interviews AJOB Editor-in-Chief David Magnus

Editor-in-Chief and co-founder of the American Journal of Bioethics (AJOB), David Magnus, Ph.D., is well positioned to explain the advantages of selecting this journal as a home for your ELSI…