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1 - 10 of 391 Topics

  • News

    ELSI Abroad: Spotlight on Australia

    Across the globe, ELSI studies continue to respond to the undeniable impacts of genetics and genomics on society and address both persistant and emerging issues. We hope that a global perspective on…
  • News

    ELSI Abroad: Spotlight on Belgium

    In this fourth installment of our series of interviews that aim to foster a global perspective on the ELSI field of study and inspire information sharing and collaboration across national borders, we…
  • News

    ELSI Abroad: Spotlight on the United Kingdom

    CERA is pleased to share a set of interviews that aim to foster a global perspective on the ELSI field of study and inspire information sharing and collaboration across national borders. In this…
  • News

    ELSI Abroad: Spotlight on Canada

    The global effort to map and sequence the human genome was accompanied by initiatives in several countries that supported the study of its ethical, legal, and social implications or aspects. Over…
  • Research Tool

    Hierarchical Mapping Technique

    The Hierarchical Mapping Technique, best described in the measures section of the validation included here, enables the collection of information about social network structure using a concentric…
  • News

    ELSI Research Methods Spotlight: Social Network Analysis

    Laura M. Koehly, Ph.D., Chief & Senior Investigator at the Social and Behavioral Research Branch (SBRB) of the National Human Genome Research Institute (NHGRI), develops and applies social…
  • Research Tool

    Perceived Caregiving Interactions and Behaviors: Malfeasance, Nonfeasance, and Uplift Scales

    The Perceived Caregiving Interactions and Behaviors: Malfeasance, Nonfeasance, Uplift Scales are used to examine whether levels of nonfeasance, malfeasance, and uplift are associated with the…
  • News

    ELSI in Review • March 2024

    About this listing ELSI in Review is a listing of recently published reviews of the literature on key ELSI topics curated by CERA staff. Our March 2024 set explores liability in applications of…
  • Research Tool

    The Parental Personal Utility Scale (Parent PrU)

    The Personal Utility Scale (PrU) asks participants to rate how useful they find nineteen outcomes of genome sequencing on a scale ranging from 1 (not at all useful) to 7 (extremely useful). This…
  • News

    ELSI in Review • February 2024

    About this listing ELSI in Review is a listing of recently published reviews of the literature on key ELSI topics curated by CERA staff. Our February 2024 set explores ethical considerations for…