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Additional Resource

The Meaning of Eugenics: Historical and Present-Day Discussions of Eugenics and Scientific Racism

"The Meaning of Eugenics: Historical and Present-Day Discussions of Eugenics and Scientific Racism" was a two-day virtual symposium convened by the NHGRI in December 2021 and led by NHGRI Historian…

Additional Resource

Image Archive on the American Eugenics Movement

A team of researchers from the Dolan DNA Learning Center of Cold Spring Harbor Laboratory created the Image Archive on the American Eugenics Movement website to host 2,500 photos, correspondence,…

Additional Resource

Polygenic Risk Methods in Diverse Populations (PRIMED) Consortium

The Polygenic Risk Methods in Diverse Populations (PRIMED) Consortium (comprised of NIH program staff, affiliate members, investigators at 7 study sites, and a Coordinating Center) is funded by the…

Research Tool

Genetics Post-Course Survey (Genotype Data)

Salari and colleagues designed this survey to measure student attitudes and knowledge about genomics and personalized medicine after taking an 8-week course on genomics and personalized medicine.…

Research Tool

Awareness and Purpose of Genetic Counseling Survey

Maio and colleagues designed this survey to measure awareness and perceptions of the purpose of genetic counseling. See the methods section and table 1 of the linked article for the survey questions…

Research Tool

Educational Video on Expanded Carrier Screening (ECS) & Autosomal Recessive (AR) Disorder

Conjin and colleagues created this brief educational video on autosomal recessive inheritance, the expanded carrier screening (ECS) test, reproductive options, and a description of MPS III (…

Research Tool

Educational Text on Expanded Carrier Screening (ECS) & Autosomal Recessive (AR) Disorder

Conjin and colleagues created this brief online written educational summary on autosomal recessive inheritance, the expanded carrier screening (ECS) test, reproductive options, and a description of…

Research Tool

Genetic Knowledge Test (Carrier Status, Autosomal Recessive Disorders, Expanded Carrier Screening)

Conjin and colleagues created this brief knowledge test to measure the effect of an educational video compared to an educational text. The educational text, video, and questionnaire used in this…