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Publication
Lived experiences of genetic diagnosis for rare disease patients: A qualitative interview study
Orphanet Journal of Rare Diseases -
Publication
Dicing with data: The risks, benefits, tensions and tech of health data in the iToBoS project
Frontiers in Digital Health -
Publication
Humane genomics education can reduce racism
ScienceThe results of a randomized trial by Donovan and colleagues suggest that "humane genomics education"—a curricular intervention that goes beyond basic, Mendelian genetics to tackle complex… -
Publication
Promising practices for inclusive precision medicine research and the contribution to public and population health
The American Journal of Bioethics -
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Publication
Cloning for the twenty-first century and its place in endangered species conservation
Annual Review of Animal Biosciences -
Publication
Public opinions and attitudes toward non-invasive prenatal testing on Reddit: Content and sentiment analysis
Public Health GenomicsXiao, Yan, and Hayeems analyzed posts and comments from four Reddit communities focused on non-invasive prenatal testing (NIPT) and found that most users thought that NIPT was beneficial or… -
Research Tool
Hierarchical Mapping Technique
The Hierarchical Mapping Technique, best described in the measures section of the validation included here, enables the collection of information about social network structure using a concentric… -
Research Tool
Perceived Caregiving Interactions and Behaviors: Malfeasance, Nonfeasance, and Uplift Scales
The Perceived Caregiving Interactions and Behaviors: Malfeasance, Nonfeasance, Uplift Scales are used to examine whether levels of nonfeasance, malfeasance, and uplift are associated with the… -
Publication
Regulatory and policy considerations for the implementation of gene drive-modified mosquitoes to prevent malaria transmission
Transgenic Research