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Video
March 2024 ELSI Friday Forum: The Impact of Dobbs on Emerging Reproductive Technologies
In 2022 the US Supreme Court Dobbs vs. Jackson Women’s Health Organization overturned federal protection for abortion. This historic ruling not only relegates this authority to state legislatures but…- Assisted Reproductive Technology
- reproductive rights
- Dobbs
- IVF
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Research Tool
Hierarchical Mapping Technique
The Hierarchical Mapping Technique, best described in the measures section of the validation included here, enables the collection of information about social network structure using a concentric… -
Research Tool
Perceived Caregiving Interactions and Behaviors: Malfeasance, Nonfeasance, and Uplift Scales
The Perceived Caregiving Interactions and Behaviors: Malfeasance, Nonfeasance, Uplift Scales are used to examine whether levels of nonfeasance, malfeasance, and uplift are associated with the… -
Video
TraineeHub | Navigating Authorship: Who's on First?
Publishing in a top-notch scientific journal is a great reason for celebration. But getting there takes time, effort, and the ability to navigate power dynamics while maintaining research integrity.…- Authorship
- academic publishing
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Video
Twisted Helix: Can Public-Private Partnership Genomic Projects Be Fair and Equitable?
Biotechnological innovation almost always entails all three strands of the triple helix: academia, government, and industry. This is increasingly true for large scale genomics and biomedical research…- Government
- Industry
- Private Enterprises
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Research Tool
The Parental Personal Utility Scale (Parent PrU)
The Personal Utility Scale (PrU) asks participants to rate how useful they find nineteen outcomes of genome sequencing on a scale ranging from 1 (not at all useful) to 7 (extremely useful). This… -
Video
ELSIconversations - The Misuse of Genomic Data, Session 2
Full title: What Can Geneticists Do to Address the Misuse of Genomic Data? Purdue University and CERA Collaboration Recent, but reemergent misuses of genetic data and research remain a critical…- Genomic Information
- genomic data
- genomic data privacy
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Video
ELSIconversations - The Misuse of Genomic Data, Session 1
Full title: What Can Geneticists Do to Prevent the Misuse of Genomic Data? Purdue University and CERA Collaboration Recent, but reemergent misuses of genetic data and research remain a critical…- Genomic Information
- genomic data
- genomic data privacy
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Video
NHGRI Informational Session on the Renewed ELSI Funding Opportunities
The National Human Genome Research Institute, in collaboration with several other NIH Institutes and Offices, recently renewed the three Notices of Funding Opportunity (NOFOs) used to support…- ELSI research
- Funding
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Video
Polygenic Risk Prediction in Diverse Populations and Contexts: Scientific and Ethical Considerations
This ELSI Friday Forum took place on January 12, 2024. The differential performance of polygenic risk scores (PRS) by population genetic background is a well-known scientific concern and one…- Polygenic risk scores
- Bioethics
- ethical considerations
- genetic diversity
- Screening for polygenic conditions and risk scores