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261 - 268 of 268 Topics

  • Research Tool

    Genetic Literacy and Comprehension (GLAC) Measure

    Hooker and colleagues designed the Genetic Literacy and Comprehension (GLAC) measure to assess research participant familiarity with eight commonly used genetic terms and concepts (genetic,…
  • Research Tool

    My46: A Web-based Tool for Self-guided Management of Genomic Test Results

    Tabor and colleagues developed My46, a self-guided, web-based information management system for individuals undergoing genetic testing in clinical and research settings, to enable them to choose…
  • Research Tool

    Preferences Instrument for Genomic Secondary Results (PIGSR)

    The PIGSR is a brief instrument that enables adult respondents the ability to express their preferences or opt out of getting secondary results. It is designed to be completed prior to testing…
  • Research Tool

    Misattributed Paternity Questionnaire

    Lowe and colleagues developed a questionnaire containing two scenarios in which misattributed paternity is incidentally discovered, possible courses of action for the doctor in each scenario, and a…
  • Research Tool

    Pediatric BRCA1/2 Testing Attitudes Scale (P-TAS)

    Peshkin and colleagues developed and tested the Pediatric BRCA1/2 Testing Attitudes Scale (P-TAS) to assess parental attitudes about and interest in testing their minor children for BRCA 1/2…
  • Research Tool

    Whole Genome Sequencing and You

    “Whole Genome Sequencing and You” is a 10-minute educational animated video about whole-genome sequencing for research participants, patients, and the general public.
  • Research Tool

    Genetic Literacy Survey

    Abrams and colleagues designed the Genetics Literacy Survey to gather information about how the public understands genomics and applies their knowledge in everyday scenarios beyond medical settings,…
  • Research Tool

    The Colored, Eco-Genetic Relationship Map (CEGRM)

    Kenen and Preters designed the Colored Ecological and Genetic Relational Map (CEGRM), a pictoral map used to organize information about client relationships with biological and non-biological kin,…