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Precision Medicine Research, ‘All of Us’, and Inclusion

A Discussion for Journalists • November 16, 2021 This is the third in a series "Genomics in Society: New Developments, New Questions: Discussions with Journalists" hosted by Hastings Center, in…

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Benefit-sharing and Pharmaceutical Development in Africa: What Does Equity Mean?

ELSI Friday Forum • November 12, 2021 There is an ongoing concern that collaborative genomic research conducted in lower- and middle-income countries by partners in high-income countries, is not…

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Law Enforcement and Genetic Data: A Discussion for Journalists

Law Enforcement and Genetic Data: A Discussion for Journalists • October 26, 2021 This is the second in a series "Genomics in Society: New Developments, New Questions: Discussions with Journalists"…

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Genomics, Human Behavior, and Social Outcomes

Genomics, Human Behavior, and Social Outcomes • October 12, 2021 This is the first in a series "Genomics in Society: New Developments, New Questions: Discussions with Journalists" hosted by Hastings…

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Genomic Data Sharing: Putting Principles and Policy into Practice

ELSI Friday Forum • October 8, 2021 Genomic data governance principles were largely developed for data collection and use in research contexts. Boundaries between genome research and clinical…

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Welcome and Opening Remarks

Welcome and opening remarks to the ELSI Virtual Forum  Sandra Lee, PhD Mildred Cho, OhD

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Remembering 9/11: Ethical, Legal and Social Issues with Using DNA for Disaster Victim Identification

ELSI Friday Forum • September 10, 2021 Following the attack on the World Trade Center in New York City on September 11, 2001, investigators engaged in the greatest forensic challenge in the US and…

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Current Legal Challenges to Abortion: Implications for Prenatal Genetics

ELSI Friday Forum • July 9, 2021 Multiple US states have passed laws limiting the ability to terminate a pregnancy affected by Down syndrome or other genetic conditions, with the Ohio version of…

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Ethical Challenges in Novel Gene Therapies for Sickle Cell Disease

ELSI Friday Forum • June 11, 2021 Pilar Ossorio, JD, PhD, moderates this session with panelists Liza-Marie Johnson, MD, MPH, MSB, and Melissa Creary, PhD, MPH, describing the current state of…

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Genomics and Data Sovereignty: Policy and Deliberative Approaches for Engaging Indigenous Communities

ELSI Friday Forum • May 14, 2021 Nanibaa’ Garrison, PhD, moderates the session with panelists Stephanie Russo Carroll, DrPH, MPH, and Justin Lund, MA, discussing Indigenous data sovereignty and…