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In the Media
NEWS 23 February 2024 ‘All of Us’ genetics chart stirs unease over controversial depiction of race
Nature |Debate over figure connecting genes, race and ethnicity reignites concerns among geneticists about how to represent human diversity.- All of Us Research Program
- race and genetics
- Ethnicity
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In the Media
‘All of Us’ reports half of the genomes it has sequenced are from non-Europeans
STAT News |Six years ago, the National Institutes of Health placed its biggest ever bet on precision medicine, launching a study to enroll over 1 million participants in an ambitious data-gathering…- All of Us Research Program
- Pangenome
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In the Media
23andMe Breach Targeted Jewish and Chinese Customers, Lawsuit Says
The New York Times |The class-action suit said the genetic testing company failed to notify customers whose personal information was compiled into “curated” lists that were sold on the dark web.- 23andMe
- genetic data
- Biobanking and genomic databases
- breaches of confidentiality
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In the Media
U.K. approves world’s first CRISPR-based medicine, giving green light to therapy for sickle cell, thalassemia
Stat News |Regulators in the U.K. on Thursday approved a CRISPR-based medicine to treat both sickle cell disease and beta thalassemia, making it the world’s first therapy built on the revolutionary gene-editing…- CRISPR
- CRISPR gene therapy
- Sickle Cell
- Thalassemia
- gene therapy
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In the Media
Panel Says That Innovative Sickle Cell Cure Is Safe Enough for Patients
The New York Times |The decision by an advisory committee may lead to Food and Drug Administration approval of the first treatment for humans that uses the CRISPR gene-editing system- CRISPR
- Sickle Cell
- gene therapy
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In the Media
People of African ancestry are poorly represented in genetic studies. This effort will change that
The Los Angeles Times |Scientists are setting out to collect genetic material from 500,000 people of African ancestry to create what they believe will be the world’s largest database of genomic information from the…- Pangenome
- African genomics
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In the Media
Family of Henrietta Lacks Settles With Biotech Company That Used Her Cells
The New York Times |Ms. Lacks’s family had accused Thermo Fisher Scientific of profiting from her cells, which have contributed to revolutionary advances in medicine, without seeking their permission.- HeLa
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In the Media
The quest for the era of personalised medicine
BBC |The Human Genome Project was supposed to lead to personalised medicine tailored to our DNA. It's finally happening, but it is proving more difficult than anyone could have imagined.- personalized medicine
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In the Media
The search for the world's 'missing' genomes
BBC |Enormous strides have been made to unravel the secrets of the human genome, so why are we missing the genetic information of most of the planet?- Inequality
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In the Media
Forget designer babies. Here’s how CRISPR is really changing lives
MIT Technology Review |The gene-editing tool is being tested in people, and the first treatment could be approved this year.- Gene Editing